Disclosure issues in neuroscience research

Issues of disclosure arise in neuroscientific research during the informed consent process, whenever incidental findings are identified, and when study results are generated. The possibility of disclosure of incidental findings and/or research results may raise informational expectations on the part of subjects and may alter a study's risk:benefit ratio. We recommend that the informed consent process address this potential consequence of research participation, and specify the conditions under which particular types of information will be offered, the conditions under which information may not be disclosed, and any provisions for helping subjects make sense of the information to be disclosed.     

Women's autonomy,women's status and fertility-related behavior in Zimbabwe

Women's household decision-making autonomy is a potentially important but less studied indicator of women's ability to control their fertility. Using a DHS sample of 3,701 married black African women from Zimbabwe, I look at women who have no say in major purchases, whether they should work outside the home,and the number of children. When men dominated all household decisions, women were less likely to approve of contraceptive use, discuss their desired number of children with their spouse, report ever use of a modern method of contraception, and to intend to use contraception in the future. However, women's decision-making autonomy was not associated with current modern contraceptive use. Women who had no decision-making autonomy had 0.26 more children than women who had some autonomy. These autonomy measures provide additional independent explanatory power of fertility-related behavior net of traditional measures of women's status such as education and labor force participation.     

“Difficult,Messy, Nasty,and Sensational”

Feminist publishing played an important role in the feminist art movement of the 1970s and into the 1980s, and Heresies: A Feminist Publication on Art and Politics was a key journal in this landscape. This paper argues that Heresies is important not only because it was a forum for some of the most influential feminist art women of the period, but because it experimented with an editorial structure that required participants to reckon with the discomforts of difference. Editors of the periodical took seriously the feminist critique of hierarchically structured organizational cultures and both promoted and practiced collective publishing. Moreover, through an emphasis on editorial statements, I consider how Heresies gives expression to the affective entanglements of the women involved in Heresies' specific form of collaboration and collective feminist politics. An examination of the editorials as sites of affective intensity helps to come to an understanding not of what women were thinking, writing, and making, but how they may have felt about their work and their relationships with women with whom they worked.     

Sustainable Caregiving? Demands Upon and Resources of Female Carers of Adults with Intellectual Disability

Female carers of adults with an intellectual disability are increasing in our communities as those with intellectual disability live into middle and old age. Twenty-seven carers between the ages of 45 and 85 years responded to questionnaires about demands, resources, and their health. Almost all were in the clinical range on the measure of psychological functioning. Demands contributed significantly to poorer functioning; however, other measures did not. The women in this study appeared to underreport the level of difficulties they experienced. The caregiving role undertaken by these women does not appear to be sustainable under their current circumstances.     

Care without coercion – mental health rights,personal recovery and trauma‐informed care

Australian mental health services continue to use involuntary measures in response to consumers' mental distress. Regardless of the intent behind these practices, the experience of being forced to receive treatment, be secluded or restrained is traumatic and can cause further distress and harm. Other parts of the health or social service system have shifted to approaches that emphasise agency, social context, prevention, and rights. Three frameworks currently used in mental health services – human rights, personal recovery, and trauma‐informed – are consistent with a shift away from the use of force. We applied these frameworks to the text of the National Standards for Mental Health Services 2010 to analyse the degree to which it reflects a shift. We also analysed the public text of speakers' notes from the Care Without Coercion Conference 2012 concerning lived experiences of force in mental health services. The analysis highlights force in many aspects of policy. The findings have implications for directions of change, including freedom from violence; support for decision making; access and choice about community and inpatient options; safety and risk management; and greater understanding of current policy frameworks through engagement with people with lived experience about the options and impact of support processes that exclude the use of force.     

Beyond the urban stream syndrome: organic matter budget for diagnostics and restoration of an impaired urban river

In response to water quality standard violations linked to excessive organic matter (OM) and a lack of sampling data informing the Total Maximum Daily Load (TMDL), an organic matter budget was created to quantify and identify sources of OM in the lower Jordan River (Salt Lake City, UT). By sampling dissolved, fine and coarse particulate OM, as well as measuring ecosystem metabolism at seven different sites, the researchers aimed to identify the origin of excess OM, and understand pathways by which different size classes of the OM pool are generated. The dissolved fraction (DOM; 94 %) was found to be the dominant form of OM transported within the river with fine particulate organic matter (FPOM; 6 %) the second most abundant, and coarse particulate organic matter (CPOM; 1 %) transport relatively insignificant in the overall OM budget. Primary production exceeded respiratory losses in the upper river, and this, along with OM inputs from two tributaries (where water reclamation facilities discharge into the river) delivered excess OM to the impaired lower reaches. Increasing stream metabolism index (SMI) with distance downstream (>1 in the lower river) further demonstrated that transport of excessive organic matter into the lower river was from upstream sources and not due to lateral inputs. This simple approach to characterizing the organic matter budget as it relates to water quality in the Jordan River was effective and could serve as a model for future studies attempting to quantify and identify sources of OM in urban ecosystems.     

Division of Household Labor and Social Judgments in Israel: The Influence of Gender and Education

The study investigated how men and women with high and low levels of education perceive male and female targets who participate or do not participate in household chores. It was found that individuals liked both men and women who participated in the household chores more and wanted to engage in activities with them more than with the low‐participating targets. The participating man was perceived as more popular than the low‐participating man and was perceived as more feminine but not less masculine. In addition, although participants with both high and low levels of education preferred the participating man, the more educated participants preferred him more, attributed more masculinity to him, and expressed willingness to befriend him and engage in activities with him more than those with a lower level of education. It seems, then, that whereas in the 1990s both highly and less educated individuals perceive a male target who participates in household chores more favorably, this preference is more pronounced among the more educated individuals.     

The Role of Behavioral Theory in Model Development Research with Single Parent Families

In this paper, the authors critically examine the plight of single parent families with young children. Next, they lay out in detail the contributions of the behavioral perspective to practice model development research with single-parent families of children under the age of 12. The authors discuss implications for future theory driven practice model development research with cultural specific single parent families. They believe that future model development research efforts with culturally diverse single parent families will aid in advancing the state of cultural competence research in social work while assisting single parents relieve suffering and enhance child and family well-being.     

The disability self‐direction movement: Considering the benefits and challenges for an Australian response

The following article provides a snapshot of the current self‐direction movement within the disability sector across the industrialised world, with particular emphasis on the Australian context. As a global movement, self‐direction has been in progress for several decades through a variety of implemented responses. Despite implementation variation, all self‐direction models aim to facilitate individual control and decision making in care and support services. We describe self‐direction, its various models and programs, and explore its benefits and challenges. We conclude by making broad recommendations for decision makers involved in self‐direction. In particular, we offer a hierarchical decision tree that can be used to inform policy decisions at a systems – government policy – and organisational level.