Dynamic modelling of long-term care decisions

This paper describes and analyzes research on the dynamics of long-term care and the policy relevance of identifying the sources of persistence in caregiving arrangements (including the effect of dynamics on parameter estimates, implications for family welfare, parent welfare, child welfare, and cost of government programs). We discuss sources and causes of observed persistence in caregiving arrangements including inertia/state dependence (confounded by unobserved heterogeneity) and costs of changing caregivers. We comment on causes of dynamics including learning/human capital accumulation; burnout; and game-playing. We suggest how to deal with endogenous geography; dynamics in discrete and continuous choices; and equilibrium issues (multiple equilibria, dynamic equilibria). We also present an overview of commonly used longitudinal data sets and evaluate their relative advantages/disadvantages. We also discuss other data issues related to noisy measures of wealth and family structure. Finally, we suggest some methods to handle econometric problems such as endogeneous geography.     

Short Break and Respite Services for Disabled Children in England: Comparing Children's and Parents' Perspectives of Their Impact on Children

Researchers, health and social care workers often seek to understand the perspectives of children; but gathering views directly from children can present difficulties. Parents are often asked to provide accounts of children's feelings or opinions on the assumption that their proxy reports are accurate and unproblematic. This qualitative thematic analysis of open‐question responses from 352 parents and 73 disabled children examines their accounts of the impact of short break services on disabled children. Participants' perspectives differed; children tended to describe immediate outcomes such as enjoying activities and participation; parents acknowledged these, but focused on longer term developmental outcomes for children.     

Unanticipated ethical issues in a participatory research project with individuals with intellectual disability

The conduct of a participatory research investigation into the everyday literacy of adults with intellectual disability within the context of a PhD thesis highlighted issues related to the ethics of participatory research and the need to revisit and reconsider ethical guidelines around working with individuals with intellectual disability. Tensions were identified between participatory research ideology and the reality of research experiences, with additional issues arising due to disability in the first author.     

Clinical Social Work Practice with Former System Youth with Mental Health Needs: Perspective of Those in Need

The purpose of this study is to describe the types of programs and mental health services former system youth with mental health histories would be inclined to engage in to manage their mental health difficulties, along with the factors that might hinder them from engaging in these services. A series of closed and open-ended questions on potential programs and services were asked, as part of a larger study. Participants were former system youth; specifically 18?C30?year olds who were diagnosed with a mood disorder and were involved with public mental health and social services (e.g., public welfare, child welfare, juvenile justice) during childhood. Responses to the open-ended questions were categorized and percentages are reported from the yes/no items. Eighty-three percent and 76% reported that they would be enticed to come to a support group and panel discussion on mood disorders, respectively, while only 46% reported that they would attend a family support group. Talking with others who have had similar experiences, material possessions and creative expression were the most common responses regarding what would entice them to get involved. Further, peer disrespect, transportation, and daycare were common barriers to potential participation. As the field continues to build knowledge on system-wide strategies to improve agency-based mental health care for transitioning youth and young adults, new evidence-based approaches may benefit from listening to the specific needs, preferences, and suggestions of these youth themselves.     

Couple and family interventions in health problems

Intervention research for couples and families managing chronic health problems is in an early developmental stage. We reviewed randomized clinical trials of family interventions for common neurological diseases, cardiovascular diseases, cancer, and diabetes, which is similar to the content of previous reviews discussed later. One overriding theme of these studies is that patients with chronic illnesses and their families face a variety of challenges to which researchers have responded with an array of treatment modalities. Very few of the interventions reviewed, with the exception of treatment for adolescents with diabetes, tested family psychotherapy models. Most interventions were time-limited therapeutic interventions that trained families to improve their communication and problem-solving skills, individual and family coping skills, and medical management. Researchers more clearly described mechanisms of change in intervention studies with cancer and diabetes than with other diseases, and not surprisingly, they found greater empirical support for their interventions. Family interventions show promise to help patients and family members manage chronic illnesses. To develop an empirical base for family approaches to managing chronic illnesses, interventions must be based on theories that delineate mechanisms of change in family processes and skills in medical management necessary to maintain patients' and family members' health.     

Group decision-making: An economic analysis of social influence and individual difference in experimental juries

In jury decision-making, individual viewpoints must converge to reach a group consensus. Convergence of viewpoints may reflect reasonable compromises, for example if jury deliberations reflect informational influences and social learning which allow individual jurors to correct biases, misunderstandings and/or imperfect recall of evidence. Conversely, some individuals may converge towards others’ viewpoints because of normative influences including peer pressure and preferences for conformity and these can generate biases in the final jury judgements. This paper presents experimental data showing that groups do have a significant tendency to compromise in jury-like settings. Econometric evidence shows that group characteristics, including the presence of acquaintances and strangers within the jury group, affect the extent of compromise. The implications are that jury deliberations may be biased by factors not relevant to a specific case, limiting the objectivity of jury decisions.     

Effects of Maternal Responsiveness on Infant Responsiveness and Behavior in the Still‐Face Task

The effects of maternal responsiveness on infant responsiveness and behavior in the Still‐Face Task were longitudinally examined through infants' first 3 months. Maternal vocal responsiveness and infant vocal and smiling responsiveness significantly increased when infants were 2 months of age. Mothers showed continuity of individual differences in vocal responsiveness from the infants' newborn period. Maternal responsiveness predicted infant responsiveness within and across sessions. Compared with infants with low‐responsive mothers, infants with high‐responsive mothers were more attentive and affectively engaged during the Still‐Face Task from 1 month of age. Infants with high‐responsive mothers discriminated between the task phases with their smiling at 1 month, a month before infants with low‐responsive mothers did so. Infants in both groups discriminated between the phases with their attention and nondistress vocalizations throughout their first 3 months. Results suggest that maternal responsiveness influences infant responsiveness and facilitates infants' engagement and expectations for social interaction.     

Apathy and Antipathy: Media Coverage of Restrictive Immigration Legislation and the Maintenance of Symbolic Boundaries

Although the government no longer explicitly establishes boundaries of whiteness, it continues to play a central role in shaping symbolic boundaries between immigrants and nonimmigrants through immigration lawmaking. However, the salience of these boundaries may depend on how the media disseminate them to the public. In this study, we investigate media framing of immigration lawmaking using an original data set of news coverage of six of the most widely recognized exclusionary immigration bills and laws at different levels of government. Two patterns emerged from an iterative frame analysis. First, in their coverage of frames critical of these bills and laws, outlets devoted more attention to the effects of exclusionary legislation for nonimmigrants. Second, in their coverage of frames supportive of the restrictive legislation, outlets provided more space to those who openly associated immigrants with criminality and terrorism. Regardless of outlets’ seemingly neutral stance toward restrictive legislation, their disparate coverage of exclusionary lawmaking demonstrates apathy and antipathy toward immigrants, which has repercussions for the maintenance of inequality.     

Challenges Experienced at Age 100: Findings From the Fordham Centenarian Study

ABSTRACT

This article examines the challenges experienced by very old individuals and their consequences for well-being and mental health. In order to capture unique issues experienced in very old age, 75 participants of the population-based Fordham Centenarian Study answered open-ended questions on everyday challenges. Theme-based coding was then used to categorize and quantify responses. The challenges mentioned most often were challenges faced in the functional (e.g., physical health/activities of daily living restrictions, mobility, sensory impairment), psychological (e.g., loss of well-liked activity, dependency, negative emotions, death), and social (e.g., family loss) life domains. Functional challenges were negatively associated with aging satisfaction and positively associated with loneliness. Psychological challenges were positively linked to aging satisfaction. Social challenges were marginally related to loneliness. Notably, challenges were not related to depression. In conclusion, the challenges experienced in very old age are multidimensional and multifaceted, unique in nature, and have differential relations to mental health. Functional, psychological, and social challenges affect very old individuals’ lives and therefore need to be better understood and addressed. Given their consequences, it is imperative for policy makers to develop an awareness for the different types of challenges faced by centenarians, as there may be unique policy implications related to each.