The L'Arche Program for Persons with Disabilities

The International Federation of L'Arche is made up of intentional, ecumenical, faith-based communities where people with and without developmental disabilities live together. Data on the worldwide federation offers an understanding of L'Arche communities that celebrate and encourage diversity and solidarity. Characteristics of clients and assistants as well as the daily running of homes reveal the inner workings of the program. Through assessing strengths and weaknesses, it is shown that even though L'Arche is a small movement that cannot serve every person with a developmental disability by providing a home and a place of belonging, this program offers a program model with many strengths that should be replicated.     

Many Faces of Openness in Adoption: Perspectives of Adopted Adolescents and Their Parents

Parents and adolescents (mean age, 15.7 years) from 177 adoptive families participating in the second wave of the Minnesota/Texas Adoption Research Project were interviewed about their post-adoption contact arrangements. The sample included families with no contact, stopped contact, contact without meetings, and contact with face-to-face meetings between the adolescent and birth mother. Openness arrangements were dynamic, and different openness arrangements were associated with different experiences and feelings. Adoptive families with contact reported having higher levels of satisfaction about their openness arrangements, experiencing more positive feelings about the birth mother, and possessing more factual and personal knowledge about the birth mother than did families without contact. Adolescents and adoptive mothers in the contact with meetings group reported the greatest satisfaction with their openness arrangements; those with no contact or stopped contact reported the least satisfaction with their arrangements. Participants having no contact were more likely to want the intensity of contact to increase in the future rather than stay the same. Many participants already having contact wanted it to increase in the future. Fewer than 1 percent of all participants wanted to see the intensity of contact decrease.     

Research Note: The LIVITY study: research challenges and strategies for engaging with the black caribbean community in a study of HIV infection

There is an increasing incidence of new HIV‐1 diagnoses among black Caribbeans in the UK, but there has been limited research in this area. The LIVITY study is the first in‐depth epidemiological and behavioural study to examine the impact of HIV among black Caribbeans in the UK. The UK black Caribbean community has traditionally been regarded as less likely to participate in clinical research and surveys. We identified three major challenges to recruitment to the LIVITY study: general distrust of the research process; the considerable stigma surrounding HIV in the black Caribbean community and the sensitivity of obtaining detailed sexual histories. The strategies devised to help overcome these barriers to optimise recruitment included: the establishment of a black Caribbean Community Advisory Group to facilitate communication between the community and the researchers and assist in questionnaire design to improve acceptability to the participants; use of healthcare practitioners as gatekeepers; extensive piloting and modification of the questionnaire among black Caribbean patients; reassurances of confidentiality during recruitment; and ethnic matching between interviewer and study participants. Another challenge was the high rate of loss to follow‐up among eligible patients, potentially compromising the study’s generalisability. Nevertheless, use of the above strategies resulted in a satisfactory enrolment rate of 57%, who were representative of all eligible patients.     

Questions of process in participant-generated visual methodologies

There is an increasing literature on visual methodologies in which images are generated by participants as part of the research, as distinct from the analysis of existing images or images taken by the researcher. Although there are growing numbers of publications that present frameworks for analysing images and their meaning, this is an area requiring further deliberation and consolidation. Our contribution is to give serious attention to the processes of image production in participant-generated visual methodologies. We examine methodological and ethical considerations that arise before, during and after image production. Our work is in health research and we focus specifically on two methods: first, a combination of photovoice and photo-elicitation, in particular with young people; and second, drawings as research method. Based on examples using these two methods, we pose questions of process for image production and submit this for interrogation for reasons of methodological, analytical and ethical rigour.     

Ditching the Desks: Kinesthetic Learning in College Classrooms

In this article we argue that social science instructors at all levels should openly embrace kinesthetic learning as an everyday pedagogical tool. The standard model of instruction at the college level relies on lecture, perhaps with special alternative activities (e.g., simulations) scattered throughout each semester. We argue that students benefit from alternative instruction styles incorporated into their everyday classes. We outline several alternative instruction techniques we have used in our classrooms centered on kinesthetic learning. The kinesthetic activities that we present require little to no additional work on behalf of the instructor but allow the students to engage more fully with the given material and with each other. Furthermore, these simple examples allow instructors to remain relevant in physical classrooms, offering a straightforward counterpoint to the recent trend toward MOOCs (massive open online courses) in higher education.     

‘How a Slave was Made a Man’: Negotiating Black Violence and Masculinity in Antebellum Slave Narratives

In the manner in which they portrayed black masculinity, fugitive slave autobiographies published in the 1840s represented a sharp break from abolitionist narratives produced during the previous decade. Unlike anti-slavery authors writing in the 1830s, slave narrators of the 1840s deliberately renounced any connection between black manhood and a willingness to commit horrific acts of retributive violence against whites. At the same time, fugitive slave authors insisted on the admirable manliness of the African American men they depicted, including themselves as the protagonists of their stories. The return that radical abolitionist authors made to a glorification of black violence in the 1850s marks the publication of slave narratives in the 1840s as an exceptional moment in the history of antislavery literature. The popular success of these narratives, contrasted with the unpopularity of the more violent antislavery texts of the 1830s and the 1850s, also reveals the fears of black violence that white Americans harboured throughout the antebellum period and fugitive slave authors' consciousness of those fears.     

“They Always Ask What I'm Doing and Who I'm Talking to”: Parental Mediation of Adolescent Interactive Technology Use

Burgeoning technology provides instant access to information and communication. Responsible adults are concerned about the material accessed by adolescent technology users. From an ecological system's lens, using a mixed-methods design, the current study identified adolescent and parent perceptions of parental mediation of adolescent interactive technology use (i.e., cell phones, Internet). Eighty adolescents (16–18 years of age) and their parents (n = 113) participated in the study that identified generational differences in perceptions of parental mediation, techniques for mediating interactive technology (i.e., monitoring data and usage, active mediation, rules, restriction), and adolescent perceptions of the process of parental mediation. We used the results to propose principles for parental mediation of adolescent interactive technology use and provide directions for future research.     

Managing moods and parenting: Perspectives of former system youth who struggle with emotional challenges

Young adults who were served in public systems of care as children are much more likely than their peers to be parenting in adolescence and young adulthood. They are also more likely than their counterparts to have a history of mental health problems. This study examined the perspectives of young adult parents with mood problems who had been involved in public systems of care before age 18. Qualitative interviews with twenty-eight participants were analyzed to examine the experience of managing moods and parenting. Young parents described how their symptoms impact their parenting and how parenting impacts their coping. They also described the strengths and challenges of using mental health services while parenting. Findings highlight the need to provide interventions that include supports for both parenting and symptom management and for providers to include both tangible and emotional support in their interventions.     

“At a moment,you could collapse”: Raising children with autism in the West Bank

The current qualitative study examined knowledge, attitudes, burdens and coping strategies related to caring for a child with an autism spectrum disorder (ASD) in the West Bank. Based on a sample of 24 Palestinian parents, the study found that parents struggled with financial stressors, child behavioral and medical challenges, and depression. Few parents were aware of ASDs prior to their children's diagnoses. Furthermore, discrimination and stigma from extended family members and the larger community intensified parents' feelings of shame and experiences of social isolation. While some parents coped by withdrawing from the community or denying the diagnosis, others aimed to increase social interactions and access information. Religious coping was found to be partly adaptive for some of the participants. The study underscored the vital need to increase community awareness of ASDs and increase social support for parents in the West Bank.