‘Wasting precious time’: young men with Duchenne muscular dystrophy negotiate the transition to adulthood

Supporting young disabled people at the transition to adulthood has long proved to be a challenging task. Young men with Duchenne muscular dystrophy (DMD) have until recently died before they reached adulthood. Now they are living longer but with a corresponding lack of forethought about how they should be supported in adulthood. This study investigated in three regions of England what was happening for young men with DMD and how they were being supported. Semi-structured interviews were conducted with 37 young men (aged 15+) with DMD and 58 other family members. The findings suggested that too many young men had finished education and training and were at home during the day without meaningful activity. In part, the complicated nature of shifting expectations across the life-course had made planning for an adult life with DMD very challenging. This could be exacerbated by problematic assumptions and stubborn barriers.     

Changes in At-Risk American Men's Crime and Substance Use Trajectories Following Fatherhood

Fatherhood can be a turning point in development and in men's crime and substance use trajectories. At-risk boys (N = 206) were assessed annually from ages 12 to 31 years. Crime, arrest, and tobacco, alcohol, and marijuana use trajectories were examined. Marriage was associated with lower levels of crime and less frequent substance use. Following the birth of a first biological child, men's crime trajectories showed slope decreases, and tobacco and alcohol use trajectories showed level decreases. The older men were when they became fathers, the greater the level decreases were in crime and alcohol use and the less the slope decreases were in tobacco and marijuana use. Patterns are consistent with theories of social control and social timetables.     

Teaching social work students

The evolution of the training methods described in this paper was based on a search for relevant material, in the eyes of the student as well as the lecturer. The cornerstone of our method was to create simulations of applied situations taken from student placement experiences, and tease out both the communication elements and the central issues relating to a number of particular social work concepts. In creating explicit linkage with placement experience, the principle of student choice, in terms of identifying situations and themes appropriate for simulation, was of importance. At the same time, we would emphasize the importance of the earlier social skills and social work inputs in the course, in laying a necessary foundation for the development in the student of an ability to benefit from the broader strategy adopted in the thematic approach.     

A Reply to Gambino's "An Epidemiologic Note on Verification Bias: Implications for Estimation of Rates"

While two-stage designs in problem gambling research are expensive and relatively difficult to execute, they have the potential to yield more accurate prevalence estimates as well as valuable additional information about gambling and problem gambling in the community. However, gains in precision are heavily dependent on the accuracy of the screening methods used and the sample sizes involved. Sound practice requires reliable information about the variances and confidence levels associated with different screens. In the spirit of contributing to the ongoing dialog about ways to improve the measurement of problem gambling, we examine several reasons to question whether the revised estimates offered by Gambino are in fact an improvement.     

Index of Authors Volume 55, 2001

Authors Index

Index of Authors Volume 55, 2001     

Quality of Life Indexes for National Policy: Review and Agenda for Research

A number of governments and public policy institutes have developed Quality of Life Indexes – statistics that attempt to measure the quality of life for entire states or regions. We develop 14 criteria for determining the validity and usefulness of such QOL indexes to public policy. We then review 22 of the most-used QOL indexes from around the world. We conclude that many of the indexes are successful in that they are reliable, have established time series measures, and can be disaggregated to study subpopulations. However, many fall short in four areas: (1) indexes vary greatly in their coverage and definitions of domains of QOL, (2) none of the indexes distinguish among the concepts of input, throughput, and output that are used by public policy analysts, (3) they fail to show how QOL outputs are sensitive to public policy inputs, and (4) none have examined convergent validity against each other. We conclude that many of these indexes are potentially very useful for public policy and recommend research to further improve them.     

Screening procedures using quadratic forms

In quality control, a performance variable having a two-sided specification limit is common for assessing lot quality. Sometimes it is difficult or impossible to measure the performance variable directly; for example, when testing is destructive, expensive, or when the performance variable is related to the lifetime of the product. However, it may happen that there are several concomitant variables which are easily measured and which correlate highly with the variable of interest. Thus, one may use measurements on these variables to select or screen product which will have a high conditional probability of meeting product specification. We consider this situation when all variables have a joint multivariate normal distribution and the specification limits on the performance variable are two-sided.     

Selections from SINET – The Social Indicators Network News

Social Indicators Research -     

Telling a Good Story: Using Narratives in Vocational Rehabilitation With Veterans

Because of the high chronicity of work-related problems in a Veterans Administration Medical Center population, many of the traditional methods of career assessment, counseling, and placement have proven ineffectual. In this article the authors detail the development of an intervention based on narrative or storytelling principles. They describe efforts to introduce this model to patients as well as to relate patients' stories to vocational outcomes. The usefulness of stories as an organizing principle for counselors and clients is discussed, and suggestions are offered for further uses of storytelling interventions.