Unreasonable adjustments: the additional unpaid labour of academics with disabilities

Abstract

Two recent contributions to this section have drawn attention to the barriers which academics with disabilities have to navigate in academia where ableism “is endemic” (Brown and Leigh, 2018 Brown, N & Leigh, J (2018) Abelism in academia? Where are the disabled and ill academics. Disability & Society, 33 (6): 985–989.[Taylor & Francis Online], [Web of Science ®] , [Google Scholar]: 4). Hannam-Swain (2018 Hannam-Swain, S (2018) The additional labour of a disabled PhD student. Disability & Society, 33 (1): 138–142.[Taylor & Francis Online], [Web of Science ®] , [Google Scholar]) highlighted the additional intellectual, emotional and physical labour required of her as a disabled PhD student, and Brown and Leigh (2018 Brown, N & Leigh, J (2018) Abelism in academia? Where are the disabled and ill academics. Disability & Society, 33 (6): 985–989.[Taylor & Francis Online], [Web of Science ®] , [Google Scholar]) queried “where are all the disabled and ill academics?” However, Brown and Leigh primarily focus on those with invisible “conditions” and the dilemmas raised by disclosure in a context where such conditions negate academic status and credibility. In contrast, since my “disability” is visible, I do not share the dilemma/“luxury” of secrecy. My presence announces my status before me, and this negates my personhood altogether in academic settings. It also places a burden of additional unpaid labour upon me which has significant mental health and career impacts as well as violating principles of equality.     

Contrasting perspectives of parents and service providers on respite care in Queensland,Australia

Abstract

Parent-carers need support to continue to care for their child with significant disability in their home. There has, however, been little evidence that respite interventions have consistent or enduring beneficial effects on carer well-being. This article reports the findings of a qualitative study which adopted an Appreciative Inquiry philosophy to interview parent-carers of children with significant intellectual and/or developmental disabilities on how formal support services have helped them maintain their health and well-being, and disability support staff on how they help such parent-carers foster their health and well-being. We conclude that better communication and collaboration between service providers and users, more targeted training of workers, and embracing a person-centred and family-centred approach to respite services are needed. In addition, clearer definition and communication of the scope of respite services are required to best support families of children with significant disability in their home.     

‘We are actually,after all,just children’: caring societies and South African infantilisation of adults with intellectual disability

This article comments on infantilisation by attending to South African adult intellectual disability (ID) care through an intersubjective ethics of care lens, and shows how such an ethic can shine light on shifting our responses towards ID. Care performance data were gathered from three sources within two South African specialist ID care sites – from 10 adult residents, 16 nurses as spatiotemporal carers, and three wards as ethnographic sites. Deeply embedded and interwoven throughout various care practices is the disabling of adults with intellectual impairment when literally referred to as ‘children’. These adult-unmaking processes constitute practices that fall short of Tronto and Kittay’s caring societies ethic. Care exchanges generate relational and intersubjective spaces in which people are understood as never meeting full criteria for personhood. Infantilising care dynamics require urgent attention if we wish to change ways in which ID is viewed and responded to in South Africa.     

Through a filtered lens: unauthorized picture-taking of people with dwarfism in public spaces

People with dwarfism often encounter discrimination in their daily interactions with strangers. Staring, harassment and infantilization are some of the behaviours they have reported to encounter. Through two qualitative research studies conducted in 2013 and 2015/16 it was revealed that people with dwarfism also experience strangers taking unauthorized pictures of them. This article explores this phenomenon in depth, utilizing the perspective of individuals who have experienced it first hand and analysing the relevant socio-historical influences. These include the history of the photographic exploitation of ‘abnormal’ bodies, and the cultural construction of a ‘dwarf’ as an object of entertainment. This article engages gaze theories in gender and race and ethnicity studies as well as a discussion of Foucault’s interpretation of the ‘panopticon’, positing that the advent of the cell-phone camera in the twenty-first century has altered how ‘abnormal’ bodies are recorded within oppressive ideological beliefs.     

Assistive technology for disabled visual artists: exploring the impact of digital technologies on artistic practice

Abstract

Disabled artists with physical impairments can experience significant barriers in producing creative work. Digital technologies offer alternative opportunities to support artistic practice, but there has been a lack of research investigating the impact of assistive digital tools in this context. This article explores the current practice of physically impaired visual artists and their experiences around the use of digital technologies. An online survey was conducted with professional disabled artists and followed up by face-to-face interviews with 10 invited artists. The findings illustrate the issues disabled artists experience in their practice and highlight how they are commonly using mainstream digital technologies as part of their practice. However, there is little awareness around novel forms of technology (e.g. eye gaze tracking) that present new creative opportunities. The importance of digital tools for supporting wider practice (i.e. administrative and business tasks) was also highlighted as a key area where further work is required.     

Refugee resettlement and the Convention on the Rights of Persons with Disabilities

The Convention on the Rights of Persons with Disabilities (CRPD) created pathways for people who are refugees with disabilities to resettle and build new lives. Resettlement country Australia, in response to its CRPD obligations, created greater access to the waiver of visa health requirements for humanitarian entrants. This article chronicles key documents demonstrating that the CRPD has been an effective instrument for improving access to resettlement for people with disabilities. The article also describes new challenges to Australia’s compliance with the CRPD as it fails to address multiple discrimination of people from refugee backgrounds with disabilities, an area of concern to the Committee on the Rights of Persons with Disabilities for which it has issued guidance. This article proposes creating a United Nations High Commissioner for Refugees Resettlement Submission Category for disability to improve resettlement programmes’ compliance with the CRPD.     

当前中国城市社区矛盾冲突的新特点

2005-2007年,课题组对24个东北城市社区进行调研时发现东,北城市社区矛盾冲突呈现多样化、复杂化的趋势,这些特点既体现了东北城市社区矛盾冲突的特殊性,又具有中国城市社区矛盾冲突的一般性.由此,可以洞见当前中国城市社区发展中所面临的主要矛盾冲突问题.     

高校图书馆数字参考咨询现状分析及研究

介绍数字参考咨询服务的概念、特征、内容及其与传统咨询服务的异同,指出高校数字参考咨询服务存在技术、数据库建设、人才、服务质量、知识产权保护等方面的问题,并提出解决这些问题的相应对策和建议。     

How student teachers (don’t) talk about race: An intersectional analysis

This study explores how student teacher talk about their students illuminates the identities ascribed to these same students. It uses a hybrid intersectional framework based on Disability Studies, Critical Race Theory, and Latino Critical Theory and methodologies (like examining majoritarian stories, counter-storytelling, coded talk, and post-civil rights race talk) to uncover how student teacher talk reveals oppressive discourses of race, disability (and language status). This article focuses on how the medicalization of disability facilitates student teachers not identifying the racialization of disability in school. It demonstrates the need for educational research to employ an intersectionality lens when exploring educational issues related to students’ identities.     

Living on the margin: disabled Iranians in Belgian society

This paper explores the antecedents, experiences and consequences of marginalization as reported and dealt with by disabled Iranian immigrants in Belgium. This work extends the work of Gallie and colleagues and Siegrist demonstrating that the forces of marginalization applicable to all immigrants are particularly pertinent to disabled immigrants. The research is based on 26 in‐depth, face‐to‐face interviews, focus groups, interviews with government officials and immigration experts, ethnographic work and official government statistics. The findings detail how the combined forces of history, context and reasons for immigration; isolation, vulnerability and perceived loss of control; religion and rejection; lack of reciprocity in social exchanges; problems in obtaining jobs; and difficulties in negotiating an entry into Belgian society combine to sustain marginizalation. As a consequence, disabled immigrants in this group are generally excluded from society and discriminated against in terms of citizenship, education, jobs and general acceptance.