Book review

Living Together: Towards Inclusive Communities by Michelle Thompson‐Fawcett and Claire Freeman ed. Otago University Press, Dunedin. 2007. 240 p. NZ$39.95 (paperback). ISBN 1877372293.

Standing Upright Here: New Zealand in the Nuclear Age 1945–1990 by Malcolm Templeton. Victoria University Press in association with The New Zealand Institute of International Affairs, Wellington. 2006. 400 p. $NZ49.95 (paperback). ISBN 0864735405     

The impact of a respite volunteer ‘buddy’ programme on behavioural and psychological well-being in young carers

Young carers often face a great amount of emotional burden and have high practical and social responsibilities. The role of being a young carer is associated with behavioural, developmental, physical and psychosocial problems that may not only affect the individual in childhood but also in adulthood. The aim of this study was to investigate the effect of a Danish respite volunteer programme called The Buddies for Children and Youngsters Programme on young carers' (n = 49; aged 6–16) social–emotional functioning. A pre–post-design was applied, and data were collected through the parent version of the strengths and difficulties questionnaire (SDQ), here with an impact supplement at baseline and at the end of the programme (after 4 months). The programme showed a positive impact on emotional symptoms, hyperactivity symptoms, conduct problems, peer problems, prosocial aspects and impact aspects, with mean differences values of −2.50 (p = .000), −0.62 (p = .271), −1.18 (p = .000), −0.74 (p = .008), 0.62 (p = .004) and −0.88 (p = .007), respectively. Furthermore, a large effect was found for the total difficulties score: −5.03 (p = .000). In conclusion, the programme seems promising considering its effect on young carers' social–emotional functioning. However, future research should include comparative studies with a longer duration.     

Sons and daughters of foster carers and the impact of fostering on their everyday life

The paper presents results from a study of sons and daughters of foster carers, and the impact of fostering on their lives. Children and young people participated in focus groups and discussion groups, and 684 answered a questionnaire. Eight were interviewed in‐depth. The results from the study showed that sons and daughters of foster carers were highly involved in the fostering assignment. Most children and young people valued their relationship with foster children, but even though relations to foster children were good, fostering could imply complicated changes of everyday life. Sons and daughters of foster carers may have to cope with conflicts connected to behavioural disorders of foster children, and they gained knowledge about foster children’s problematic lives. Fostering also implied contact with natural parents of foster children. Such contact could challenge children’s and young people’s’ perception of adequate parenthood. For some respondents it was hard to become aware of the dysfunctional parenting, abuse and/or neglect to which foster children might have been exposed. The results of the study provided evidence of the need to acknowledge the contribution to fostering made by sons and daughters of foster carers, and also to recognize the impact fostering may have on their lives.     

Combining Work and Care: Carers' Decision-making in the Context of Competing Policy Pressures

Issues related to paid work and care are of global importance, reflecting the twin pressures of population ageing and efforts to increase labour market participation. Informal carers of sick, disabled or older people can experience tensions between policies aimed at support for care and support for employment. This article discusses a study of carers’ decision‐making around work and care, drawing on evidence from interviews with 80 working‐age carers in England. Carers are not homogeneous; their circumstances and needs differ reflecting age, gender, ethnicity, labour market participation, and the condition and/or needs of the person they support. This diversity is illustrated by contrasting rural and urban carers’ decisions and experiences about work and care. Key factors that impact on carers’ decisions are: current and anticipated financial need; the constraints arising from receipt of carers’ and other means‐tested income maintenance benefits; personal identity; job opportunities and scope for flexibility; social services provision; carers’ own health. Distance, travel times and transport are unique additional challenges for rural carers who (wish to) work. These difficulties are further intensified when they intersect with other factors such as the Carer's Allowance, the local labour market and social services provision. The findings are evaluated in terms of the adequacy of current government policy measures.     

How children experience fostering outcomes: participatory research with children

This paper presents findings from longitudinal research that uses quantitative and qualitative methods to explore children’s perceptions of outcomes of the care experience. Children’s self‐assessments on two occasions reflect a high level of psychosocial need. Important relationships emerged regarding the children’s judgements of their interpersonal skills and attachments. Children who displayed stronger maternal attachment were likely to sustain highly cohesive relationships with the rest of the foster family. Themes emerging from the data are discussed, including the role of foster mothers and fathers in enhancing developmental outcomes for children.     

From Provider to Enabler of Care? Reconfiguring Local Authority Support for Older People and Carers in Leeds, 2008 to 2013

Abstract

This article explores developments in the support available to older people and carers (i.e., caregivers) in the city of Leeds, United Kingdom, and examines provision changes during a period characterized by unprecedented resource constraint and new developments in national-local governance. Using documentary evidence, official statistics, and findings from recent studies led by the author, the effects of these changes on service planning and delivery and the approach taken by local actors to mitigate their impact are highlighted. The statistical data show a marked decline in some types of services for older people during a 5-year period during which the city council took steps to mobilize citizens and develop new services and system improvements. The analysis focuses on theories of social quality as a framework for analysis of the complex picture of change related to service provision. It concludes that although citizen involvement and consultations exerted a positive influence in delivering support to some older people and carers, research over a longer timescale is needed to show if these changes are adequate to protect older people and carers from the effects of ongoing budgetary constraints.     

Dads care too! Participation in paid employment and experiences of workplace flexibility for Australian fathers caring for children and young adults with disabilities

This study uses Australian survey data to explore whether caring for children and young people with disabilities affects paid employment participation of fathers who identify as the secondary caregiver. More fathers in the study were in full-time employment than those in the general Australian population, but they worked fewer hours, often in jobs they did not enjoy or roles with less responsibility. Over one third of fathers reported that caring had impacted on their job opportunities or career progression, particularly those whose children had more severe disabilities. The financial costs of raising a child with disabilities and their caring obligations informed many of the decisions fathers made in relation to employment. Fixed hours of work, lack of understanding from their employer, an income tied to hours worked and staff resources were cited as reasons why almost half of the fathers felt they were unable to access flexible working conditions to assist with their child’s care. Self-employment was seen by many fathers as desirable, but the perceived increase in flexibility may be accompanied by an increase in work hours. Implications for paternal well-being are discussed, along with the lifelong implications of caring on employment and financial security for families in the Australian context.     

Foster carer perceptions of support and training in the context of high burden of care

The challenges of providing sensitive and structured care for children in foster care go well beyond normative experiences of parenting. The present paper describes a mixed‐methods study of foster carers' perceived need for support and training, referenced to estimates of their burden of care. Semi‐structured interviews were conducted with 17 foster carers in the Canterbury region of New Zealand. Carers' perceived need for support and training were identified through qualitative analysis of interviews using domain analysis method. Carers' burden of care was estimated from the Parenting Stress Index and from a measure of carers' encounters with children's emotional, behavioural and relationship difficulties that was designed for the present study (the Caregiver Behavioural Encounters Index). Foster carers reported substantive, unmet needs for support and training. Foster carers also reported high parenting stress and encounters with a wide range of children's mental health difficulties, including both uncommon and severe difficulties, which together represent an exceptional burden of care. Carers' highest priority need was for training and support on managing and responding to children's mental health difficulties, while their greatest existing support came from Caregiver Liaison Social Workers and other carers. The findings suggest a number of critical implications for practice.     

Sharing the care: the qualities sought of social workers by foster carers

Given that foster carers are a scarce resource it is essential that every effort is made to retain their services. This paper considers the role played by social workers in this endeavour. The results reported here form part of larger study, involving seven local authorities, concerned with the wider issues of supporting foster placements. The paper describes the qualities sought of social workers by foster carers and discusses the relationship between these qualities and the likelihood that carers will continue fostering. It was found that carers are highly satisfied with the job of fostering, are committed to it and view social workers as a vital source of support. Promoting good relationships between social workers and foster carers is therefore an important element in any strategy that aims to retain good foster carers.     

Experiences of Family Carers for Persons Using Antipsychotic Medication

Given the emphasis on the use of antipsychotic medication for severe mental illness, it is important to understand family carers’ perspectives on these medications and their effects on consumers’ lives. Such information may enable providers of family interventions to better understand families’ circumstances and more effectively support them in caring for mental health service users. Snowball sampling was used to recruit 29 family carers. Family carers acknowledged the calming effect of antipsychotic medication on service users, but also noted that there were few other therapeutic benefits. Moreover, the positive influence of antipsychotic medication was in most cases largely offset by the detrimental impact of antipsychotic medication on service users’ quality of life. The family carers in rationalising the trade‐off between beneficial and adverse antipsychotic medication effects typically experienced resignation, which was often accompanied by a sense of frustration that resulted from the reliance on medication.