Family Caregiving and the Site of Care: Four Narratives About End-of-Life Care for Individuals with Dementia

Little is known about end-of-life care for individuals with Alzheimer’s disease and other dementias. Four case studies are presented, using data collected by qualitative interviews conducted with family caregivers who were closely involved with end-of-life care for relatives with dementia. The case studies are formatted in two pairs, with one reflecting two deaths occurring at home and the other pair representing two deaths in the nursing home. The cases reveal a range of end-of-life experiences, suggesting that there is not just one “good” path. The extent of care needed, the responsiveness of the individual, the health of the caregiver(s), and the residence and support situations, can all intersect in a variety of ways that make no one scenario the answer for all. Although most people say they would prefer to die at home, in some situations the nursing home can be a satisfactory choice, particularly if hospice is involved. These narrative case studies give the reader insight into the variety of the end-of-life experiences and suggest the environment should be considered as part of the care provision.     

历史记忆与家族建构——以湘西田氏土司后裔为中心的考察

作为传递历史记忆的媒介,口述传说、文字、身体、仪式、碑刻等不一定能完全客观地呈现历史事实,但透过这些方式选择、重组与诠释的“过去”,往往成为人们合理化当前社会现实的重要方式。湘西古丈县田家洞为改土归流前永顺宣慰司下辖的小长官司,村中土司后裔——田氏自改革开放后,藉由祖先传说、修谱与立碑、仪式展演等活动叙写家族历史,强化族众认同。实际上,围绕历史记忆展开的家族建构不仅体现了不同能动者之间的权力角逐,也为诠释“传统”在现代社会的复苏提供了一种视角。     

家庭背景、学业表现与研究生教育机会获得

随着高校毕业生数量的逐年攀升和经济发展对高端人才需求的增长,越来越多的本科毕业生选择继续接受研究生教育以提高自己在劳动力市场中的竞争优势。本文对首都大学生成长追踪调查数据进行了实证分析,研究发现,2010年和2012年毕业于北京高校的本科生中,约有三分之一的学生选择了继续接受研究生教育,而且读研学生的家庭背景和学业表现都要显著地优于毕业后直接就业的学生。进一步的分析表明,在国内研究生教育机会获得中,家庭背景变量基本上是通过影响本科就读高校的类型和学业表现来发挥作用的,而比较海外留学与国内读研这两种选择,本科就读学校类型和学业表现对此并没有显著的影响,主要是家庭社会经济地位在起作用。上述研究发现对于当前中国的研究生教育招生和培养工作具有重要的政策意涵。     

“过日子”与农民家庭经济模式——基于关中Z村调查

关中农民以家庭为中心安排生产生活;崇尚低成本、勤劳节俭的生活方式;生活意义来源于人的现实生活。其家庭经济模式不同于黄宗智所概括的"半工半耕",而是依然保持着传统小农的生活逻辑,即"过日子"。基于关中经验,笔者在阐释"过日子"内涵的基础上,讨论农民家庭经济的特性,并分析其对社会转型的影响。     

A social policy model for the reconciliation of employment and family life from a gender equality perspective

The issue of family–employment reconciliation has rapidly evolved from being ignored to a certain dejá vu perception in public debate, as a result of its media success during the last decade. This is even more the case in Spain, where it was only in the late 1990s, when a law was passed to regulate and extend parental and other leave for workers with close relatives in need of care, that reconciliation policies began to be generally discussed and considered. In a context of quick population aging as a consequence of low fertility, concern on labor force supply in the middle term is high on the agenda. Women are increasingly considered to be necessary both as workers and mothers (of future workers), thus raising awareness of the importance of social policies to make their double presence in both worlds possible. There is now general agreement from the right to the left on the urgency to develop family–employment policies. But what is not generally addressed is the impact of such policies on gender equality, a dimension which tends to be either ignored or taken for granted. Not all reconciliation measures have the same effects on the women and men relationship. Some of them push forward equality, whereas others go backwards. Efficiency in making job and family responsibilities compatible does not always go hand in hand with increasing equality. The paper presents a theoretical model for the reconciliation of work and family life from a gender equality perspective. The three main kinds of instruments available in social policy – services, leave, and cash – are examined in four different cases: care of under-threes, care of sick children, coordination of work and school schedules, and care of children during school holidays. Each case is looked at considering its effects on social and gender equality, as well as child welfare. The model includes as active agents of the system the State (promotes and regulates), families and individuals (those directly implicated), and the market as labor market, on the one hand, and supplier of private services, on the other.     

Significant others and the dynamics of the family network (from the Proches et Parents survey to the Biographies et Entourage survey)

With the increase in separations, family recomposition, and new modes of cohabitation, the contours of the family have become less clearly defined. It has become important to separate the family group from its statistical framework – the household – while taking account, in both time and space, of the interpersonal relationships built up over the life-course. In response to these objectives, the French National Institute of Demographic Studies (INED) conducted two surveys, Proches et Parents in 1990 and Biographies et Entourage in 2001, which use new concepts to address these new family realities: the local family circle which, for an individual, includes family members living in the same municipality, with whom he/she has a close and strong relationship in terms of mutual support and regular contact, and the concept of entourage (contact circle), which includes close relatives, all co-resident persons, whether relatives or not, but also significant others who have marked the individual's life. Far from being limited to the immediate family, the universe of familial and elective relationships covers a much more complex reality whose contours may be limited to the family or extended to a wider circle of relatives and friends. It describes an affective and residential proximity that reveals a mutual support network of varying strength, which may or may not be solicited, which may be avoided or, on the contrary, revived in response to events affecting its members.     

Support,social networks and the family in Portugal: two decades of research

This article presents two major surveys, carried out in Portugal, on the inclusion of families and individuals in social networks of support and affinity. The first, dating from 1999, sought comprehensively to reconstruct families' social networks by mapping effective support relations. The second survey, fielded in 2009–10, followed a family configuration perspective which sought to reconstruct individuals' networks of close relationships, and the issue of informal support only arose as providing further insight into the characteristics of personal networks. Both surveys will be analysed from a comparative perspective which, while stressing their different but connected conceptual orientations, compares each one's methodological strategies and operationalization procedures. Finally, the main results of each survey are outlined, leading to a brief discussion of the ways in which the two surveys complement each other.     

Baby boomers and their entourage

The post-war generation of baby boomers has witnessed major transformations in family life as well as being at the vanguard of them. A study undertaken in Paris and London in 2006 among 90 individuals born between 1945 and 1954 reveals, however, strong relationships with ageing parents and adult children. Family groups based on local or dispersed entourages, with regular contact and the exchange of support, are clearly identified. Other configurations include families where affective ties persist but contact between the baby boomers and their entourage is less frequent. Few baby boomers have replaced family members with friends or remain socially isolated. These results show that the rise of individualism associated with the baby boomers has not weakened inter-generational ties, although tensions exist between the demands of family solidarity and individual projects.     

Cross‐Cultural Comparison of the Effects of Optimism,Intrinsic Motivation,and Family Relations on Vocational Identity

This study explored the effects of optimism, intrinsic motivation, and family relations on vocational identity in college students in the United States and South Korea. The results yielded support for the hypothesized multivariate model. Across both cultures, optimism was an important contributing factor to vocational identity, and intrinsic motivation partially mediated the link from optimism to vocational identity. In addition, family relations moderated the mediation effect of intrinsic motivation with American students but not Korean students. With Korean students, family relations moderated the direct link from optimism to vocational identity. These results have significant implications for counseling to promote vocational identity development for diverse college students.     

The Impact of Elder Abuse Education on Young Adults

The present study examined the effectiveness of educational interventions in altering tolerance for and behavioral intentions of elder abuse among college student young adults. Participants were 225 undergraduates who were assigned to one of four educational groups: Elder Abuse Education, Aging Education, Family Education, and a Pre- and Posttest only condition. While the Elder Abuse Education group reported less tolerance and intentions for elder abuse compared to the other groups at the immediate posttest, a decrement in such positive changes at 1-month follow-up was observed in such persons. These mixed findings suggest that while specific interventions may reduce elder abuse tolerance, supplemental educational efforts over time may be necessary to maintain intervention-specific gains in intentions and behaviors particular to elder abuse.