Anticipated Ethics and Regulatory Challenges in PCORnet: The National Patient-Centered Clinical Research Network

PCORnet, the National Patient-Centered Clinical Research Network, seeks to establish a robust national health data network for patient-centered comparative effectiveness research. This article reports the results of a PCORnet survey designed to identify the ethics and regulatory challenges anticipated in network implementation. A 12-item online survey was developed by leadership of the PCORnet Ethics and Regulatory Task Force; responses were collected from the 29 PCORnet networks. The most pressing ethics issues identified related to informed consent, patient engagement, privacy and confidentiality, and data sharing. High priority regulatory issues included IRB coordination, privacy and confidentiality, informed consent, and data sharing. Over 150 IRBs and five different approaches to managing multisite IRB review were identified within PCORnet. Further empirical and scholarly work, as well as practical and policy guidance, is essential if important initiatives that rely on comparative effectiveness research are to move forward.     

When the Norwegian child-welfare services get involved: parents making sense of referrals

There is limited research exploring parents' views and understanding of referrals to the child-welfare services (CWS). This study explores parents' understanding of the circumstances leading to a child-welfare referral, and their understanding of the reporter's objectives in making the referral. Qualitative content analysis and frequency analysis was performed on open-ended survey responses from a sample of 683 Norwegian parents in contact with the CWS. The results showed that the majority (60.2%) of the parents perceived the referral to be initiated solely because of parental difficulties and multiple family life stressors. Some of the parents (22.8%) believed the referrals were initiated exclusively because of their children's problems, whereas a few (13.3%) perceived it to be a combination of parental/familial difficulties and children's problems. The findings reveal that close to half of the parents (46.4%) felt the objective of the person making the referral was to help the child, their parents and the family. Some (36.5%) saw it as a routine or mandated action by public or official services, while others (18.7%) reported that they did not know why referrals had been made, or gave no answer to the question. A small group of parents (6%) viewed the referral as an act of harassment. The main implications of these findings are discussed.     

公共卫生支出、健康结果与卫生投入政策——基于189个国家和地区的面板门槛分析（1995—2011年）

利用189个国家和地区1995—2011年的数据实证检验公共卫生支出规模对一个国家的健康结果（婴儿死亡率和出生时的平均期望寿命）的影响，结果表明，公共卫生支出占GDP的比重对婴儿死亡率和出生时的平均期望寿命的影响具有门槛效应，门槛值分别位于1.9%和6.62%。分段回归结果显示，公共卫生支出占GDP的比重低于1.9%时，公共卫生投入对出生时的平均期望寿命没有显著影响，对婴儿死亡率的影响较弱；超过1.9%后，公共卫生投入的规模效应开始体现，对健康结果指标的影响均显著增强；超过6.62%后，公共卫生投入对婴儿死亡率的影响不再显著，对出生时平均期望寿命的弹性系数不再变化，单位边际贡献不再增加。中国当前政府卫生投入规模仍然较低，需要继续增大公共资金投入、降低个人卫生支出比重。     

美国大学社会服务的“大学社区参与”模式评析

"大学社区参与"是20世纪90年代以来美国兴起的新型大学社会服务模式。这一模式在大学与社区的合作伙伴关系基础上,以社区需求和社会发展为动力,旨在推进大学教学、科研与服务功能的综合发展,具有学术性、综合性、互惠性、公共性等特征。大学领导层、组织机构、教师参与、组织文化以及大学与社区的权力关系等因素共同决定着"大学社区参与"模式的运行状况。"大学社区参与"模式对我国大学社会服务的现代发展具有借鉴意义。     

社会变迁过程中政府能力的政策学解读--基于系统论观点

中国正处于巨大的社会变迁之中，复杂性与不确定性的环境特征对政府能力提出了更高要求。从系统论的视角看，政府能力体现在政府对变迁中社会环境的反应、适应与变革能力。基于系统论的政策学解读，政府能力最终可以归为“制定”和“执行”公共政策的能力。从环境与组织管理的关系出发，围绕公共政策的生命过程，可以分别考察政府在输入、转化、输出三个环节中政策制定和政策执行的情况，进而探讨政府能力提升的路径。     

Social cohesion in Rwanda: Results from a public good experiment

We describe a public good experiment, a type of economic experiment commonly used to examine feelings of prosociality—that is, behaviour which is positive, helpful and intended to promote social acceptance and friendship—and community cohesion, carried out in Rwanda. Contributions in different parts of the country are affected by the local intensity of the 1994 genocide, with more generous contributions being made in areas where violence was greater. This supports earlier research indicating that conflict experience leads to greater prosociality. However, we also find that people who have not, themselves, been targets of violence give lower contributions than people who have. The considerable group‐related and regional differences in social behaviour may have implications for the country's policies to deal with social cohesion.     

Letter to the Editor: Respecting the Plurality of Value and the Messiness of Scientific Practice

Evaluations of authorship and recommendations for authorship policies best heed the plurality of valuation cultures that traverse scientific practices and respect the messiness of scientific practices, for those are reflected in authorship and authorship sequence decisions.     

Penny for Your Thoughts: Beggars and the Exercise of Morality in Daily Life1

Urban sociology has tended to study interactions between passersby and “street persons” with an emphasis on the ways street persons become bothersome, harassing, or dangerous. This article moves away from the focus on the ways interactions in public go awry and focuses on how individuals account for the mundane, everyday exchanges they have with strangers who seek their help. Based on interview data (N = 31) and qualitative analysis of data from an Internet survey (N = 110), this article suggests that the presence of beggars does not inherently symbolize urban decay to passersby and does not necessarily elicit anxiety, but instead provides a valuable texture of urban life. Further, the article argues that individuals, when justifying their responses to requests for help from needy persons (beggars) in urban spaces, use a variety of cultural strategies to maintain their perception of themselves as moral persons, both when they choose to help and when they refuse. Drawing from these findings, the article suggests that urban sociology and the sociology of risk would benefit from sensitizing their studies of public interactions to the diverse meanings individuals assign to them, rather than presupposing annoyance, anxiety, or fear as their predominant characteristic.