WORDLESS PAIN

Current health care discussions often deal with issues such as self-determination, consumer orientation, civil rights and choices for patients and people with disabilities. Other experiences of illness and disability, such as pain and suffering are often avoided in these discussions because these expressions seem to confirm the public prejudice of tragic victimhood of people with disabilities. Various scholars have sought to reintroduce the enactment of the sick and disabled body into the discourses around disability. This essay is a part of that endeavour. Drawing on ethnographic fieldwork from a centre for physical rehabilitation, this article questions the idea that suffering turns people into passive victims of their bodies. By articulating the ways in which participants deal with suffering during the day-to-day activities of rehabilitation practice, the paper seeks to demonstrate that people do not passively sink into their suffering, but actively deal with it in the multiple settings and conditions of their embodied living. Three different ways in which rehabilitation participants deal with suffering will be unravelled. First, suffering is translated in the sense that it is transformed and transferred. Second, people actively manage their situation and balance different kinds of misery. Finally, people create a space where suffering is allowed to exist.     

Housing Policy and the Elderly

Subsidized senior high-rise apartments have tended to neglect the needs of an increasingly aged and frail resident population. Research demonstrates that this population has greater unmet needs than elderly who reside in traditional community housing. This paper makes the case for enriched senior high-rise apartments as a viable alternative for elders who need assistance in order to maintain an independent lifestyle.     

A personal validation of the social nature of disability: different environments,different experiences

There is neither a unified definition of disability nor a unique experience of disability across the world. The present paper aims to explore the lived experiences of disability in three different countries – Turkey, England and the USA – to evaluate the continued value of the social model of disability in those contexts. A comparison between these countries is provided through the lens of my personal experiences in each country as a disabled student and an academician. As can be seen in each example, whilst impairment does not change, the role of disabling barriers did change depending on the physical, social and psychological nature of the respective environments. We can therefore reasonably refer to the extent to which environments are disabling or non-disabling aspects of each setting. The paper provides a personal validation of the social nature of disability.     

Mapping the social geographies of autism – online and off-line narratives of neuro-shared and separate spaces

This paper draws together empirical work that has been produced by the authors in two different autistic spaces: the Swedish magazine Empowerment produced by and aimed at adults with autism, and English-speaking autistic communities online. While the two points of data collection are quite different, there are important points of commonality that enable us to explore central issues concerning autistic and neurotypical space and the meanings assigned to these in different contexts. The paper aims to introduce the notion of social geographies of autism, based on talks among adults with autism and a social movement to promote autistic identities, giving examples from our previous work that has spanned both online and off-line spaces. Key issues discussed in the paper include a focus on autistic political platforms and the carving out of both social and political spaces for people with autism. In doing so, neuro-separate and neuro-shared spaces must be negotiated.     

Cooling the Mother Out: Revisiting and Revising Goffman's Account

This article revisits Erving Goffman's important yet neglected metaphor of “cooling the mark out.” Drawing on a study of mothers whose child has Down's syndrome, I explore the value of Goffman's work for capturing how mothers interpret their child's diagnosis as a loss and rectify this breach by constructing an acceptance of their new situation. The mothers' accounts highlight how Goffman's contentions can be enriched by acknowledging the gendered, temporal, and public character of a loss. This article, thus, can be read both as a celebration and critical revision of his theoretical contribution.     

Disabled children’s childhood studies: a distinct approach?

This paper suggests that the emergence of disabled children’s childhood studies as an area of study offers a distinct approach to inquiry; it represents a significant shift away from the long-standing deficit discourses of disabled childhoods that have dominated western culture and its reaches. On the one hand, contemporary childhood studies contest normative, Eurocentric mantras around the ‘standard child’; while on the other, disability studies critique the medical discourses and the scope of its authority. However, while drawing on these two approaches, disabled children’s childhood studies provide more than this combined critique. In disabled children’s childhood studies, disabled children are not viewed as necessarily having problems or being problems, but as having childhoods.     

Inheritance,poverty, and disability

Inheritance is a significant means of transferring wealth from one generation to the next, and therefore increasingly attracts attention from researchers and policy-makers working on intergenerational and multidimensional poverty. However, until now disabled persons have been overlooked in these discussions. This oversight is particularly unfortunate because, as a group, the estimated one billion people with disabilities (some 15% of the world’s population) are among the poorest and most marginalized of the global population. Over the past decade, a small but growing literature has examined the recursive connections between poverty and disability throughout the developing world. In this paper, we argue that disabled individuals are routinely denied inheritance rights in many low-income and middle-income countries, and that this is a significant and largely unrecognized contributor to their indigence. The denial of inheritance is both a social justice issue and a practice that can no longer be overlooked if disabled persons are to be brought into the development mainstream.     

Social entrepreneurship as an employment pathway for people with disabilities: exploring political–economic and socio-cultural factors

The current economic climate demands more innovative approaches to increasing labor market participation for people with disabilities. Social entrepreneurship (SE) offers one alternative employment pathway. However, little is known about the broader factors influencing SE for people with disabilities. Using empirical data from focus groups comprised of social entrepreneurs with disabilities and interviews with key stakeholders working in the fields of policy, disability, and business, this research frames its analysis in the intersection of disability studies and entrepreneurship to explore which factors influence the potential for SE to provide equal participation opportunities for people with disabilities in the labor market. Findings suggest that further consideration of political–economic and socio-cultural factors is needed if we are to better understand the potential of SE for people with disabilities.     

A grounded theory of living a life with a physical disability in Taiwan

This study explores the experiences of disability for a number of Taiwanese adults with a physical disability. Using a grounded theory approach, their experiences of living a life with a physical disability were gained through in-depth interviews. The resulting grounded theory ‘it is more than just the impaired body’ presents the dynamic interactions between the participants and the context in which they were living their lives and how they managed their lives within that context. With its inclusion of the cultural dimension, a holistic way of understanding the daily lives of those who experience physical disability in Taiwan is provided.