Living on the margin: disabled Iranians in Belgian society

This paper explores the antecedents, experiences and consequences of marginalization as reported and dealt with by disabled Iranian immigrants in Belgium. This work extends the work of Gallie and colleagues and Siegrist demonstrating that the forces of marginalization applicable to all immigrants are particularly pertinent to disabled immigrants. The research is based on 26 in‐depth, face‐to‐face interviews, focus groups, interviews with government officials and immigration experts, ethnographic work and official government statistics. The findings detail how the combined forces of history, context and reasons for immigration; isolation, vulnerability and perceived loss of control; religion and rejection; lack of reciprocity in social exchanges; problems in obtaining jobs; and difficulties in negotiating an entry into Belgian society combine to sustain marginizalation. As a consequence, disabled immigrants in this group are generally excluded from society and discriminated against in terms of citizenship, education, jobs and general acceptance.     

‘Now I’d like to sleep with Rachael’ – researching sexuality support in a service agency group home

Many intellectually disabled people living in agency services require significant forms of support to live safe and satisfying sexual lives. Research reveals that despite support personnel working in service systems now holding largely positive attitudes towards sexuality assistance, proactive practice is rarely initiated. This article probes what might lie within this attitude/assistance gap. This investigation reveals a complex picture of practices that rely on intellectually disabled people showing conformation to a ‘couple doing normal’ ideal, so as to be judged capable of being supported. It examines how wider social locations of meaning related to ‘intellectual disability’ and ‘sexuality’ might substantiate these judgement calls. The degree to which it can be said that worker’s own attitudes and values underpin their reluctance to provide support is then explored. Finally, why researchers and practitioners might need to reappraise the complex interactions that shape worker’s practice in this area is discussed.     

Time and exclusion

Drawing on interviews with parents of children with complex disabilities in several school systems in a US state, this paper examines how temporal units such as the school day and school year and practices organized around artifacts like clocks and calendars work as ‘devices of temporal distanciation’ to separate children with disabilities from other children and exclude their families from critical relations with schools. The paper focuses on two kinds of effects: the ways differentiated timetables separate children and the ways constructing school time in bounded, discrete units limits the ability of parents and children to make key elements of their lives visible to the school.     

Getting to know reality and breaking stereotypes: the experience of two generations of working disabled women

This paper sets out the results of a Spanish study of the experience and meaning of work among disabled women of two generations, with three types of disability (physical, visual and hearing). Performing a socially recognised activity such as a job is a source of emotional welfare and self‐esteem. Moreover, it confers a certain social status. For the participants in this study the kind of work involved, whether productive, paid and ‘extra‐domestic’ or ‘reproductive’, unpaid and done at home, acquires different meanings, since for disabled women, sexist stereotypes – already more or less accentuated in the culture – social attitudes towards disability and personal factors introduce relevant differences, while leading to conflicts and dilemmas that these women have to solve. At any rate, their sense of responsibility in performing all types of work should be emphasised as evidence of their sense of independence and personal competence, forming a keystone in their construction of a sense of identity and social integration.     

Pity and pragmatism: understandings of disability in northeast Thailand

Cultural models of illness causation and treatment inform community understandings of and responses to disability. Data collected as part of a multi‐country study, conducted in 2002–2007, illustrate how villagers from northeastern Thailand conceptualise disability (pikarn). Local understandings of causality are shaped by Buddhist beliefs in accumulated demerit, and this significantly influences attitudes towards illness, adversity and bodily states. Buddhist notions of love and compassion (metta and kurana) inform appropriate responses to people living with disabilities, while local distinctions of ability and disability inform expressions of sympathy and/or pity (songsarn), with implications for the social participation of people with a disability.     

Understanding the social exclusion and stalled welfare of citizens with learning disabilities

Despite the UK’s recent history of promoting the social inclusion and equality of men and women with learning disabilities they remain a significantly disadvantaged group. Compared with their non‐disabled peers they are more likely to be unemployed, less likely to own their own homes and are at a significantly greater risk of physical and mental ill health. The first part of this paper discusses the welfare rights of citizens with learning disabilities in terms of New Labour’s welfare to work policies. The second part discusses the UK’s mixed welfare economy and its impact upon services for men and women with learning disabilities. The paper concludes by considering whether the social inclusion of men and women with learning disabilities can be promoted solely through policies that emphasise inclusion through work and the personalisation of welfare services.     

Women with disabilities and their lived experiences of physical,psychological and sexual abuse in Croatia

This research aims to generate a better understanding of the abuse of women with disabilities through a qualitative study with 28 women with disabilities in five towns in Croatia. The results show that more than half of the research participants had experienced physical, psychological and sexual abuse, and financial exploitation. Participants stressed the need for education and empowerment of women with disabilities as well as better training for professionals and ensuring that a formal support system is available in every local community. The role of social workers in emerging countries like Croatia needs to include developing individual, group and community support for women with disabilities and raising public awareness of the abuse and violence shown towards women with disabilities through political and community networks and events.     

NDIS Self‐Management Approaches: Opportunities for choice and control or an Uber‐style wild west?

This article examines the emerging challenges and opportunities presented by self‐management options in Australia's National Disability Insurance Scheme (NDIS). We examine the three different ways in which NDIS participants can opt to self‐manage their funding and services, including direct employment and emerging Uber‐style online platforms, and explore the potential implications of these options for NDIS participants, service providers and the disability support workforce. In particular, we focus on these options in relation to the transition to a marketised services landscape being developed alongside the NDIS, and examine both the risks and opportunities for each stakeholder group. Through this analysis, we identify implications for policy and practice, in particular around regulatory mechanisms and the role of government within this emerging market economy and transforming service landscape.     

Deaf studies meets autistic studies

What might deaf studies and autistic studies have in common? Why, in many cases, is deafness considered to be a norm to be analyzed through linguistic and cultural frameworks, while autism is (still) seen as pathological? Utilizing ethnographic research, participation in two conferences on autism and sign language, and an analysis of deaf peoples’ and autistic peoples’ self-(re)presentation, we attend to sensory solidarities that might exist between deaf and autistic people, communities, and studies. We argue that an analysis of the two fields side-by-side offers important insights into new ways of conceptualizing sociality, identity, and community both in the specific cases of deafness and autism, and more broadly. Additionally, attending to deaf and autistic peoples’ language and communication desires and practices opens up analytic and empirical space for considering interdependent and multimodal communicative approaches.     

Disability,personalisation and community arts: exploring the spatial dynamics of children with disabilities participating in inclusive music classes*

This paper uses personalisation and the capabilities approach to explore inclusive music classes for children with disabilities in Scotland. It provides a unique insight into the impact of participation through the voices of the disabled young musicians, their parents and tutors. The study highlights the power of inclusive spaces to transform lives, to build confidence and contest disabled identities. It engages in the spatial dynamic of opening up inclusive spaces, as well as exposing emerging tensions in the liminal space that is created through movement between safe and supported spaces and the antithesis, spaces that disempower and marginalise. The findings suggest good practice around personalisation, when conceived of from a social justice perspective, as a template for working with other marginalised groups and in other professional settings.