Family leaves, the FMLA and gender neutrality: The intersection of race and gender

Using nationally representative data on the employed, we assess the effects of gender as well as the intersection of race and gender on family leave taking post-FMLA. We find that White men are significantly less likely to take family leaves than White women and men and women of color. Although men across race are less likely to take leaves for newborns, they are almost as likely as women to take leaves for seriously ill children and parents and as likely to take leaves for spouses. Men, regardless of race, tend to take shorter leaves than women. Our results have important implications for the design of leave policy: the broadening of family leaves beyond parental leaves reduces inequality in likelihood of leave; the introduction of leaves for routine family demands probably does little to reduce gender inequality; unpaid leaves mandated by the FMLA may sustain inequality.     

The genetic connections of Alzheimer's disease: An emerging source of caregiver stress

The purpose of this study was to expand and refine current theoretical conceptualization of dementia caregiving by identifying and analyzing new potential sources of stress. A qualitative analysis of unsolicited letters (N=51) written by family caregivers of persons diagnosed with Alzheimer's disease (AD) was conducted. Content analysis of the data confirmed that providing care for persons diagnosed with AD could impart emotional, physiological, and financial stress on caregivers. The data also revealed an emerging source of stress for family caregivers—fears and uncertainties regarding possible genetic connections between family caregivers and relatives suffering from AD. These results strongly suggest that concerns with genetic connections should be included in theoretical models of stress and dementia caregiving. Implications include the need for increased dissemination of information regarding genetic connections and AD, as well as increased support for family members if and when genetic connections are discovered.     

Examining the trajectories of children providing care for adults in rural Kenya: Implications for service delivery

Research on caregiving children tends to be limited to children's caregiving experiences of parents with a specific disease or disability. This has led to a common perception that children's caregiving is a single, uniform and often long-term experience. Whilst this is most certainly the case for many children in economically more advanced countries, this may not hold true in rural Africa, where poverty and AIDS can have significant knock-on effects on entire families and communities. This paper seeks to develop a more complex understanding of children's caring experiences by asking children whom they have cared for over time and explore the different pathways that lead to their caregiving at different stages of their lives. The study reports on qualitative data collected from 48 caregiving children and 10 adults in the Bondo district of western Kenya in 2007. A multi-method approach was adapted, with historical profiles, Photovoice and draw-and-write essays complementing 34 individual interviews and 2 group discussions. A thematic network analysis revealed that children's caregiving was not confined to a single experience. Children were observed to provide care for a number of different family and community members for varying periods of time and intensities. Although their living arrangements and life circumstances often gave them little choice but to care, a social recognition of children's capacity to provide care for fragile adults, helped the children construct an identity, which both children and adults drew on to rationalise children's continued and multiple caring experiences. The study concludes that agencies and community members looking to support caregiving children need to consider their care trajectories — including whom they care for as well as the order, intensity, location and duration of their past and likely future caring responsibilities.     

Dementia Caregivers and Live Discharge from Hospice: What Happens When Hospice Leaves?

ABSTRACT

Hospice offers holistic support for individuals living with terminal illness and their caregivers. Some individuals receiving hospice services experience a slower decline in health as than expected, resulting in a ‘live discharge’ from hospice. A live discharge affects both patient and caregiver(s).The current study (N=24) explored the experiences of caregivers of adults with dementia who experienced a live discharge from hospice. Findings emphasize the comprehensive services covered under the Medicare Hospice benefit and those lost after a live discharge. Implications for social workers supporting caregivers are discussed, including the need to view the patient-caregiver unit during a live discharge.     

Caregiving environment and socio-emotional development of foster-placed FASD-children

The study investigated the role of the postnatal caregiving environment in the socio-emotional development of children under the age of 16 who had been exposed to alcohol in utero and placed in foster family care (n = 38). Quantitative and qualitative methods of analysis were utilized. Based on psychological examinations, most of the children (76%) were reported to have at least one developmental problem; concentration, attention and language/speech problems being the most typical. The critical issues affecting children's development were 1) the range of somatic illnesses and disabilities that had impaired their functional capacity, 2) children's age at the time of the first placement and of entry into long-term foster family care, and 3) the number of traumatic experiences. Placement outside a biological family at an early age decreased, and traumatic experiences, illnesses and disabilities increased socio-emotional problems (including neuropsychological problems). Undiagnosed children had more behavioural problems measured by the Child Behaviour Checklist than children with foetal alcohol syndrome, but in general the differences between the diagnostic categories were small. Damage to the central nervous system by prenatal alcohol exposure together with lack of constructive early interaction seems to launch a process which may make it difficult for the child to form a coherent picture of him-/herself and to control his/her feelings and behaviour.     

成年子女对父母的照料负担及影响因素

2005年高龄老人健康长寿调查和家庭动态社会调查数据显示,成年子女作为高龄父母的主要照料者,承受着因照料老人而带来的对自身经济状况、人际交往、社会参与、个人健康和家庭关系等方面的消极影响。通过OrdinalLogit回归分析发现：照料者的年龄、文化程度、能力、居住状况、兄弟数、被照料老人的ADL、对儿女的期望度和依赖性以及问题行为等均影响着照料负担的产生。对此,建议从立法支持、经济援助和宣传舆论等方面加强社会支持政策;并开展照料辅助服务、心理服务和互助小组等社会工作,以帮助成年子女应对照料中的问题和缓解照料负担。     

Daughters-in-Law as Caregivers: How and Why Do They Come to Care?

ABSTRACT

This exploratory qualitative study examines the family dynamics and socio-structural factors which explain how and why some women become caregivers to in-laws. As well, it explores prevailing attitudes about care by in-laws. Material is drawn retrospectively from three previous studies of caregivers in Montreal, Quebec, including 10 semi-structured interviews with daughters-in-law and 72 interviews with spousal and child caregivers. An exploratory framework of the factors which are determinant in becoming a daughter-in-law caregiver is proposed which includes such elements as: social and cultural norms regarding family responsibility for eldercare; social and cultural norms regarding the place and the rights of the elderly; rules of family relations, couple dynamics, gender dynamics and family availability.     

A Comparison of the Effectiveness of Various Approaches to Visiting Isolated Community Elderly

Two studies were conducted evaluating the effectiveness of friendly visitor programs in increasing clients' life satisfaction. Study 1 found no difference between face-to-face visiting, phone visiting, and a no treatment control on client life satisfaction. Study 2 found a marginally significant difference in favor of a personal history approach over a companionship approach to visiting in increasing client life satisfaction. Clients' living situation (alone or with others) had no effect on changes in life satisfaction in Study 1. However, in Study 2 clients who lived with someone increased their life satisfaction more than clients who lived alone.     

Ethnic Variations in Dementia Caregiving Experiences

Abstract

The proportion of minority elders with dementia in the United States is projected to rise substantially. This study elicited perceptions of the caregiving experience from informal caregivers of persons with dementia, across different ethnicities. Six focus groups with 47 dementia caregivers of African-American, Chinese-American, Euro-American, and Hispanic-American ethnicities were conducted. Caregiving roles, concern about the person with dementia, and unmet information and resource needs were expressed similarly. However, perspectives differed across ethnic groups on stigma surrounding dementia, benefits of caregiving, spirituality/religion to ease caregiving burden, and language barriers and discrimination. Findings suggest that interventions to reduce disparities in dementia care quality need to address ethnic variations in caregiving experiences.