Coming to terms with inequality and exploitation in an African state: researching disability in Sierra Leone

In this article, I describe how during my anthropological research in post‐conflict Sierra Leone with a disabled community, I was confronted by experiences of inequality and exploitation. Many disabled people had previous disabling contact with other researchers, organisations and journalists. Others described difficulties surviving the disabling socio‐economic conditions and were not viewed as ‘development’ partners, despite the fact that their images and stories had played a big role in the rebuilding and ‘healing’ of the Sierra Leonean nation state. I ask whether we as researchers and an international community are still not colluding with structures and institutions that exploit disabled people in post‐conflict and post‐disaster countries.     

The trouble with normal: the struggle for meaningful access for middle school students with developmental disability labels

This critical, qualitative study considers issues of access to the academic and social experiences of middle school for five students with labels of intellectual disability and autism through a lens of ableism and enforced ‘normalcy’. Starting from the position that schools are sites where ableist norms of performance leave many marginalized, this study privileges the perspective of individuals whose inclusion in school is most tenuous. Challenging the notion that mere access to general education classrooms and instruction is enough, this study interrogates questions of efficiency and meaningful engagement within the context of middle school. This paper first illustrates the ways that ableism pervades middle school settings and then outlines a typology of particular ways of being and performing that are privileged and an illusion of normalcy maintained. Finally, this article explores the implications of ableism and enforced normalcy on the engagement and participation of students considered to have developmental disabilities.     

‘Away with the fairies?’ Disability within primary‐age children's literature

This article outlines the findings of a new study that explores the portrayal of disability within a sample of the primary‐age children's literature most readily available to UK schools. The kind of literature to which children are exposed is likely to influence their general perceptions of social life. How disability is handled by authors is therefore important from the standpoint of disability equality. Findings suggest that whilst there are some good examples of inclusive literature ‘out there’, discriminatory language and/or negative stereotypes about disability continue to be present in a range of more contemporary children's books. Clearly, more still needs to be done to ensure that schools and teachers are provided with information relating to the best examples of inclusion literature and efforts must continue to be made to inform authors, publishers and illustrators about how to approach the issue of disability.     

Defining and Measuring the Institutional Context of National Intellectual Property Systems in a post-TRIPS world

Indices that approximate for the quality and strength of intellectual property (IP) systems are commonly used as variables in empirical international management studies. However, while international IP systems have radically transformed after the implementation of the TRIPS agreement, these contextual changes have not been accounted for in existing international management research approaches. This study examines the institutional context of IP systems in the post TRIPS implementation years by conceptualizing how IP Law on the books (regulations) and IP Law in practice (enforcement) combine. This enables the identification of two new contextual categories of IP systems that have not been conceptually, theoretically, or empirically captured in existing international management research. A review of the existing literature on indices measuring different aspects of national IP systems provides insights into how to improve future theoretical and empirical international management work that aims to study the effects of the context of IP systems in the post TRIPS era.     

Voices of youths on engagement in community life: a theoretical framework of belonging

Little is known from the perspectives of youths with intellectual and developmental disabilities themselves about their experiences related to inclusion, engagement in community life and friendship, and their quality of life. The Voices of Youths research project used an inclusive approach to learn from youths about these experiences. Twenty-four youths (age 13–24 years) with a range of intellectual and developmental disabilities diagnostic ‘labels’ participated in three video-recorded, community-based interviews. Constructivist grounded theory data analysis revealed a theoretical framework comprising the core concept of belonging and four associated concepts: engaging with similar people, having social relationships, negotiating meaningful roles, and navigating norms and expectations – finding a good fit. The findings contribute new knowledge about the ways in which these youths experience a sense of belonging from their own perspectives and can inform development/enrichment of policies, programmes, and services for these youths.     

Contesting disabling conditions of life in the Global South: disability activists’ and service providers’ experiences in Guyana

This article addresses an important gap in our understanding of issues of impairment and disability, namely challenges facing disabled activists and service providers in the majority world context of the developing nation of Guyana. The article argues that developing a southern standpoint on impairment, disability, disability activism and service provision requires a reframing of disability issues as matters of distributive justice and not only human rights. Challenges facing disability activists and service providers in Guyana included trying to combat internalized ableism, financial and cultural barriers to political engagement and visibility, tensions in claiming or rejecting disabled identities and difficulties in accessing foreign aid funding for disability initiatives. The article concludes by stressing the importance of rethinking how we do disability studies so that it allows critical analysis of the dynamics of a global capitalist corporeal class order in the context of the majority world.     

Disability,the Senses and Apparel: Design Considerations

Sensory experiences are an important but infrequently explored aspect of clothing and apparel for people living with disabilities. Clothing serves as a type of ‘gate keeper’ to the social realm, especially for people living with disabilities. Newly emerging inclusive design approaches are increasingly addressing issues of accessibility and adaptability in the built environment, and these design approaches can and should be applied to clothing and apparel. Two broad categories of interest include: (1) Overwhelming or “too much” sensation, in other words, situations in which people would like to lessen the intensity of what they feel and (2) Limited sensation, lack of sensation, or circumstances under which people crave sensory input, but are restricted from feeling due to a variety of (typically medical or neurological) reasons. The lack of suitable apparel can become a genuine barrier for people living with disabilities, exposing them to the risk of a marginalized status, preventing them from fully participating in society. These barriers illustrate how the work of anthropologists, apparel, textile and engineering design teams with knowledge of sensory issues can offer options to those seeking to regulate the type and intensity of sensory experience and make a positive impact on their daily lives.     

Don't Let Your Disease Define You

Vivian Stephenson directed information technology systems at numerous companies, including Target Corporation, as Executive Vice President and Chief Information Officer, and Williams-Sonoma, as Chief Operating Officer and Chief Information Officer. In 1994, Vivian was a recipient of the “Oscar” of information technology—the Smithsonian Institution and Computerworld Award—for developing the Planned Store Inventory System at Mervyn's Corporation. Vivian is a former chair of the Board of Trustees at Mills College, from which she received a Doctor of Humane Letters Honorary Degree in 2005 for her “ethical and compassionate leadership” and for serving as “an inspired, unwavering advocate for women and the power of education to transform women's lives and society as a whole.” Vivian survived two different types of breast cancer, diagnosed in 1980 and 1996. In 2009, she was diagnosed with stage IV ovarian cancer.     

Mind the gap: the extent of violence against women with disabilities in Australia

A comprehensive national response to violence against women with disabilities is long overdue in Australia. Work to date suggests that the issue is endemic yet largely invisible. Responses at the national level are hampered by the lack of information regarding violence against women with disabilities due to under‐reporting and inadequate capture of the prevalence of this violence. This article explores approaches to collecting data regarding violence against women with disabilities in Australia and adds to the limited body of knowledge about the prevalence of violence for these women through interrogation of available data. Further analysis of the 2012 Personal Safety Survey data indicates that among women with disabilities aged under 50, 62 per cent have experienced violence since the age of 15, and women with disabilities had experienced three times the rate of sexual violence in the past 12 months compared to those without disabilities. These findings still do not represent the full extent of violence against women with disabilities, since the Personal Safety Survey samples only women who reside in private dwellings and excludes those living in disability care settings. Insight is offered as to what is needed to comprehensively capture the required data and the implications for policy.     

Transgression,embodiment, and gendered madness: reading Homeland and Enlightened through critical disability theory

This article critically analyzes the gendering of madness on Enlightened and Homeland through the lens of feminist disability studies as it functions in relation to feminist theoretical debates about whether mental illness is a social construction designed to control unruly subjects or an embodied response to social and personal trauma. This analysis unpacks the manner in which Homeland and Enlightened represent female protagonists whose madness functions both as a site of resistance against neoliberal logics of self-sufficiency and productivity and as an embodied, experiential reality. However, in both programs, these representative strands are positioned as entirely independent of one another—resistance is limited to the workplace, while embodiment fits within the domain of home and family—and both narratives punish their protagonists for their attempts to bridge these two spheres.