Genetic screening technology: ethical issues in access to tests by employers and health insurance committees

Whereas the introduction of new technologies previously has raised the ethical question of who ought to have access to a new procedure or device, genetic testing technology raises the new ethical question of to whom access to a new technology ought to be limited. In this article we discuss the implications of employers and private health insurance companies having access to genetic testing technology. Although there may be legitimate business interests in allowing employers and insurers to conduct genetic screening, there are other valid societal interests in regulating or limiting the use of this technology by third parties. Public policy developed in the area of new genetic technology must reflect such interests.     

Pregnant women's attitudes toward the abortion of defective fetuses

A survey asked 190 pregnant women their opinions on whether a hypothetical other woman would be justified in having an abortion under ten different circumstances, four of which related to abnormalities of the fetus. They were then asked whether they would be justified in having an abortion under these same circumstances. Also assessed were these women's views concerning the justifiability of abortion for a specific group of fetal abnormalities, neural tube defects. Respondents were more likely to view abortion as justifiable for a hypothetical other than for themselves. However, there was no evidence that pregnant women's views about abortion are more conservative than those of the general public. The majority of respondents considered abortion of a defective fetus to be justified, both for themselves and for others. The best predictor of abortion attitudes was respondent's views about the ideal number of children in a completed family.This research was supported by a grant from Maternal and Child Health Research, Bureau of Community Health Services, DHHS. Reprint requests should be sent to Dr. Ruth Faden at the Johns Hopkins University School of Hygiene and Public Health, Division of Health Education, 615 N. Wolfe Street, Baltimore, MD 21205.     

An intelligent dynamic simulation model for designing software development processes

This paper describes a computer-aided software development process design. This is a computerized intelligent tool designed to aid managers of software development projects in planning, managing and controlling the development process of medium to large scale software projects. The application of this computerized tool should help reduce the uncertainties involved in the budget, personnel and schedule planning of software development projects.     

Decision-making and informed consent: A study of the impact of disclosed information

This paper is an empirical and normative study of several problems about informed consent in the law and in biomedical ethics. Its particular focus is on the adequacy of prevailing standards of informed consent in medicine and law. These standards generally govern adequate disclosure on the physician's part, to the relative neglect of the equally significant question, ‘What constitutes a valid consent on the patient's part?’ New empirical data regarding the actual decision-making behavior of patients is presented. It was gathered by studying patients considering whether to consent to the use of nonsurgical contraceptive techniques. Three hypotheses are examined regarding how disclosed information affects the decision-making process. Results indicate that disclosed information is not avowed as the prime determinant of the consent decision, that disclosed information does have some effect on the decision-making process, and that disclosed information does not impair or confuse the decision-making process. In conclusion, a number of implications for major areas of ethics and law are pointed out, with special emphasis on three areas of law: the materiality standard, causation, and the therapeutic privilege.     

An evaluation of college online alcohol-policy information

Excessive and underage drinking by US college and university students continues to be a significant problem. Curtailing the misuse of alcohol on college campuses is an important goal of college and university administrators because of the many negative consequences resulting from alcohol misuse. As part of their prevention programs, US colleges and universities are required by law to make information about their alcohol policies available to students. Often the source of this information is the school's Web site. The authors evaluated the alcohol-policy information that is available on the Web sites of the 52 top national universities listed in the 2002 rankings of US News and World Report. In general, they found that the information was difficult to find, was located in many areas of the Web site, and did not provide complete information about the school's alcohol policy.