Experiences of families with relatives with intellectual and developmental disabilities in a consumer-directed support program

The current study explores the experiences of families with relatives with intellectual and developmental disabilities participating in a consumer-directed support program in the USA. The Illinois Home Based Support Services Program provides a limited budget to purchase and manage services. However, within recent years the program has faced cuts and changes. This context provided a rich environment to explore the benefits of the program, as well as oppressive forces creating barriers to the control of financial resources by individuals with disabilities and their families. Financial benefits, benefits from respite and personal assistance services and prevention of undesirable institutional placements were major themes that emerged and triangulated with previous research. The following themes emerged concerning barriers to the control of financial resources: provider and professional control, disability as a deserving group, fraud and abuse perceptions and familism. These themes appear to fit well within a social model of disability applied to the family.     

Developing the Concept of Transparency for Use in Supply Relationships

Management concern surrounding the supply of goods and services from business to business, and the related attempts to understand the phenomena observed therein, appears to rest upon a broad range of incompatible perspectives, from political science (often limited to considerations of power) to the logistical (akin to manipulation of a great, benign but dynamic jigsaw puzzle). It appears that all perspectives abrade against the difficulties of exchanging information, knowledge and innovation within the relationships between buying and selling organizations and the apparent chronic systemic inefficiency that transactions often represent in this context. This article addresses these concerns, exploring the concept of transparency and the developments necessary for it to be useful in exchanging sensitive information and tacit knowledge in supply relationships. Our central concern is how the understanding of transparency and its commercial importance may change when it is expressed as a manageable element of the relationship between two organizations rather than as a general property of a broader system (e.g. a supply network, industrial sub-sector, geographical cluster) and what utility this differentiation might hold for managers. The conclusion to the article, and the implication for managers, is that transparency might indeed be created and usefully managed within supply relationships but that it would differ fundamentally in meaning from previously posited concepts, with the same name, in different contexts.     

Analysis of Regional Scale Risk of Whirling Disease in Populations of Colorado and Rio Grande Cutthroat Trout Using a Bayesian Belief Network Model

Introduction and spread of the parasite Myxobolus cerebralis, the causative agent of whirling disease, has contributed to the collapse of wild trout populations throughout the intermountain west. Of concern is the risk the disease may have on conservation and recovery of native cutthroat trout. We employed a Bayesian belief network to assess probability of whirling disease in Colorado River and Rio Grande cutthroat trout (Oncorhynchus clarkii pleuriticus and Oncorhynchus clarkii virginalis, respectively) within their current ranges in the southwest United States. Available habitat (as defined by gradient and elevation) for intermediate oligochaete worm host, Tubifex tubifex, exerted the greatest influence on the likelihood of infection, yet prevalence of stream barriers also affected the risk outcome. Management areas that had the highest likelihood of infected Colorado River cutthroat trout were in the eastern portion of their range, although the probability of infection was highest for populations in the southern, San Juan subbasin. Rio Grande cutthroat trout had a relatively low likelihood of infection, with populations in the southernmost Pecos management area predicted to be at greatest risk. The Bayesian risk assessment model predicted the likelihood of whirling disease infection from its principal transmission vector, fish movement, and suggested that barriers may be effective in reducing risk of exposure to native trout populations. Data gaps, especially with regard to location of spawning, highlighted the importance in developing monitoring plans that support future risk assessments and adaptive management for subspecies of cutthroat trout.     

Social entrepreneurship as an employment pathway for people with disabilities: exploring political–economic and socio-cultural factors

The current economic climate demands more innovative approaches to increasing labor market participation for people with disabilities. Social entrepreneurship (SE) offers one alternative employment pathway. However, little is known about the broader factors influencing SE for people with disabilities. Using empirical data from focus groups comprised of social entrepreneurs with disabilities and interviews with key stakeholders working in the fields of policy, disability, and business, this research frames its analysis in the intersection of disability studies and entrepreneurship to explore which factors influence the potential for SE to provide equal participation opportunities for people with disabilities in the labor market. Findings suggest that further consideration of political–economic and socio-cultural factors is needed if we are to better understand the potential of SE for people with disabilities.     

Teacher-Based Racial Discrimination: The Role of Racial Pride and Religiosity Among African American and Caribbean Black Adolescents

This study explored the extent to which private regard and religiosity beliefs serve as protective factors for school bonding among African American and Caribbean black adolescents who experience racial discrimination in school. Findings are drawn from a nationally representative sample of (n = 810) African American and (n = 360) Caribbean black adolescents (52% girls) aged 13–17 (M_age = 15, SD = 1.42) years. Results suggest that perceiving racial discrimination from teachers was associated with lower levels of school bonding for African American and Caribbean black adolescents. For African American adolescents, perceiving more racial discrimination from teachers and reporting lower private regard beliefs was associated with less school bonding. The findings for Caribbean black adolescents revealed that endorsing moderate levels of religiosity and perceiving higher rates of teacher discrimination was associated with less school bonding. The developmental significance and implications for future research are discussed.     

Condom Use Trajectories in Adolescence and the Transition to Adulthood: The Role of Mother and Father Support

Few studies have investigated how mother and father support differ on predicting youths' sexual risk behavior. We therefore examined the influence of parental support on condom use trajectories and its correlates in a predominantly African American sample [(N=627; 53% female; M = 14.86 years (SD=. 64)] from adolescence to young adulthood. We used hierarchical growth curve modeling to examine the relationship between condom use, substance use, psychological distress and parental support prospectively. We found that consistent condom use decreased over time and was associated negatively with psychological distress and substance use. Furthermore, both maternal and paternal support were associated with more condom use over time. We discuss the implications of our findings for HIV prevention programs.     

Demography and Social Science

Research has demonstrated that son preference has a serious impact on the survival and well-being of female infants and children in some parts of South and East Asia, but little is known about the consequences of son preference in later childhood and adolescence. We compare children's growth trajectories in height over childhood and adolescence in China, where the level of son preference is relatively high, and the Philippines, where it is relatively low. Children's height reflects long-term nutritional status and exposure to infectious diseases, both influenced by household decision-making and, presumably, by a preference for sons. Using data from two high-quality longitudinal studies and multilevel growth models, we find that male children in China show an additional height advantage relative to their female counterparts, when compared to the sex difference in growth trajectories in the Philippines. Further analysis reveals that the additional advantage of males in China is stronger in rural areas.     

Racial identity, racial discrimination, perceived stress, and psychological distress among African American young adults

This study examines the direct and indirect relationships among racial identity, racial discrimination, perceived stress, and psychological distress in a sample of 555 African American young adults. A prospective study design was used to assess the influence of two dimensions of racial identity attitudes (i.e., centrality and public regard) on other study variables to investigate the relationship between racial identity attitudes and psychological distress. The results show some evidence of a direct relationship between racial centrality and psychological distress, as well as evidence of indirect relationships for both centrality and public regard through the impact of racial discrimination and perceived stress. In addition, racial centrality was both a risk factor for experiencing discrimination and a protective factor in buffering the negative impact of discrimination on psychological distress. Results are discussed within the context of identifying multiple pathways to psychological well-being for African American young adults within the context of racial discrimination.     

A Longitudinal Study of Depressive Symptoms and Marijuana Use in a Sample of Inner‐City African Americans

The association between marijuana use and depressive symptoms was examined longitudinally in a sample of 622 African American youth, interviewed on six occasions, using hierarchical linear modeling (HLM). We considered whether depressive symptoms predicted changes in marijuana use and vice versa from high school through the transition into young adulthood. We also examined gender differences in these behaviors over time. The results indicated that depressive symptoms predicted later marijuana use only for males. Marijuana use did not predict later depressive symptoms for females or males. These findings are consistent with a unidirectional hypothesis indicating that marijuana use may play a role as mood regulator among young males, but not among females. Research findings also indicate that females with lower depressive symptoms use more marijuana than females who report high depressive symptoms. These findings did not change even after controlling for the effects of using other substances at previous stages, school achievement, and demographics factors. These results suggest that depressive symptoms may be an antecedent of marijuana use among African American males.