Engaging with the Disability Rights Movement: the experience of community-based rehabilitation in southern Africa

This paper argues that unless community-based rehabilitation CBR programmes enter into genuine consultation with the disability rights movement they are in danger of repeating the mistakes of institution-based rehabilitation. Partnership between CBR programmes, and disabled people's and parents' organisations in southern Africa has led to the development of a more consumer focused approach to CBR Where disabled adults and parents have been fully involved in the design and implementation of programmes, CBR workers have a clearer understanding of disability as a development issue. Education, employment and poverty alleviation have been given a higher priority than medical rehabilitation in these programmes. The evolving concept of CBR and its relationship with the disability rights movement has been observed and documented by The Save the Children Fund, and forms the basis of this paper.     

Stories of Non‐Becoming: Non‐Issues,Non‐Events and Non‐Identities in Asexual Lives

In contrast to conventional models of positively “becoming” an identity through social interaction, this article explores the inverse, negational process of “non‐becoming,” whereby actors start but do not continue along an identity career trajectory. Through cumulative attrition, interactions and encounters at key moments create an overall pattern of non‐progression. Using asexuality as an example, we identify three main trajectory stages of non‐awareness, communicative negation and non‐consolidation, each involving interactional contingencies. With a wider applicability to other repudiated identities, this model shows how even negational symbolic social objects (non‐issues, non‐events, and non‐identities) are constituted through social interaction.     

Resolutions: Working with Families Where Responsibility for Abuse is Denied

Current thinking suggests that little productive work can be undertaken with families where serious physical or sexual abuse of children has occurred in the absence of a clear acceptance of responsibility for that abuse. This means that children are often removed from their families because of the perceived risks, with the disadvantages that being looked after in local authority care often brings. Alternatively, children may be left in the same environment where serious abuse has taken place with little or no work being undertaken with the family. Either approach fails children, especially those who have made clear and believable allegations in the hope of bringing about a process of change and protection. This article describes the work of a pilot project at the Avon NSPCC in Bristol working with families where the alleged abuser disputes responsibility for maltreating the child. Key to this approach is the support of the non-abusing carer and the child/ren while the concerns of the professional agencies are addressed. The work has two main phases. The first looks for structural change in the organization of family life. The second part asks carers to role-play a ‘similar’ hypothetical family where child abuse has been established. This enables difficult issues raised by the abuse to be addressed and provides an opportunity for carers to express thoughts and feelings to their partner regarding abuse without the seriousness of the concerns being lost.     

The Unlived Life Is Worth Examining: Nothings and Nobodies behind the Scenes

This paper explores how people talk about the things that have not happened in their lives. I argue that we can perform reverse biographical identity work upon our unmade selves by exploring the meanings of unlived, non-experience. Challenging one's own rehearsed life story is an act of narrative self-transgression, involving negative responsibility assumption. Drawing on my symbolic interactionist theory of “nothing,” I consider how negative social phenomena (no-things, no-bodies, and non-events) are interactively accomplished and retrospectively made sense of in personal accounts. Themes of lost opportunities, silence, invisibility, and emptiness emerge from an analysis of twenty-seven stories. These tales reveal a mixture of emotions: not only sadness, stigma, shame, and regret, but also relief, pride, acceptance, and gratitude. Narratives of nothing are often ambivalent in tone, reflecting the complexity of storied life behind the scenes.     

Invitations to Collusion: A Case for Greater Scrutiny of Men's Behaviour Change Programs

Men's behaviour change groups have been operating in Victoria since the early 1980s. Unlike their criminal justice‐based counterparts in the USA, Canada and the UK, groups in Victoria arose as stand alone voluntary programs within the community health and family support sectors. Their focus on therapeutic engagement, education and invitations to responsibility has at times failed to include consequences for men who continue to use violence and abuse while attending the group. This article argues that unless facilitators build in consequences for men whose violence continues, they can inadvertently collude with the violent behaviour. Including women partners in ongoing evaluation is one means of reducing this collusion. This view is drawn from research into behaviour change groups in Melbourne over the last decade.     

‘Pick me up and not a down down,up up’: how are the identities of people with aphasia represented in aphasia,stroke and disability websites?

Suddenly acquiring a permanent impairment means a person must learn to think differently (Frank, 1995), and he or she does so partly by telling stories. The most commonly told illness narratives are 'restitution' narratives. People with aphasia (a communication impairment commonly following stroke) surfed aphasia, stroke and disability websites, read the personal stories attached to them, and created their own narratives in response. Charitable and disability-related websites excluded people with aphasia through their tone, content and narrative 'voice.' Engagement with some websites was contingent on subscribing to a specific perspective on aphasia. Personal narratives attached to charitable websites were seen to reflect the organisational stance. In particular, idiosyncracies of aphasic language were often eliminated. When participants constructed their own web pages they replicated the stylistic traits that had previously been criticised. Identities are mercurial and difficult to pinpoint. Further work with people with aphasia using videoclips, soundclips and other non-text-based techniques to create illness narratives is planned.     

Reclothing the Emperor: The Swimming Pool as a Negotiated Order

This article examines the unspoken rules, routines, and rituals of the swimming pool, using ideas from negotiated order theory, Foucault, Goffman's dramaturgical theory, and symbolic interactionism. It identifies three sets of social norms: respect for personal space, respect for individuals' disciplinary regimes, and the desexualization of encounters. I show how these rules are (normally) followed or (occasionally) breached through various rituals, and examine the consequences for interaction order. The tale of “The Emperor's New Clothes” is used analogously to explain why actors cannot consciously attend to their precarious construction of reality, yet remain poised to defend it.