乳腺癌遗传基因的医学伦理学思考

乳腺癌是妇女最常见的恶性肿瘤之一,目前发病年龄提前,发病率呈上升趋势.其中有5%～10%的乳腺癌患者伴有遗传基因突变,遗传基因中最引人注目的是BRCA1基因.遗传基因的发现可在分子水平早期诊断乳腺癌,可早期采取预防措施,减少乳腺癌的死亡率.另一方面也给带有突变基因的家族带来巨大的精神负担,甚至引起法律、保险、伦理学等问题.希望在发现遗传基因的同时能让该基因真正地造福于人类而不是出现新的基因"贱民".     

Visibility of the ovaries and breasts: an analysis of Angelina Jolie’s medical announcements

Advanced epithelial ovarian cancer is the deadliest gynecologic cancer; yet public knowledge about the disease is limited. This essay critically examines the limited visibility of ovarian cancer using Angelina Jolie’s medical announcements in 2013 and 2015 as examples. The essay also examines how Jolie’s case reinforces and also challenges hegemonic notions of femininity, the woman’s body and health, and how it explicates limitations in discourses of choice and risk. I argue that normative views about the female body play significant roles in shaping how and what we know about women’s health.