Squashed dreams and rare breeds: ableism and the arbiters of life and death

The week beginning 29 June 2015 is not just historic for the closure of the Independent Living Fund in the United Kingdom, but for me was the week they decided that my life is not worth investing in; they being NHS England, NICE and, with them, the Department of Health. They chose not to support the enzyme replacement therapy that has been not only keeping me alive, but giving me a quality of life – enabling me to return to finish my Disability Studies PhD exploring how Christian leaders explain disability, where ethics have become the main topic, and to rebuild my career – or so I thought.     

‘It didn’t come up on my radar’: an examination of students’ orientation toward disability justice in the US

Abstract

While social justice is a well-recognized concept, it is less frequently examined through the lens of disability. In order to address existing gaps within social justice education, this qualitative case study investigates how participation in a semester-long Introduction to Disability Studies (IDS) course affected students’ orientation toward disability justice, or the conception of disability as an issue of social justice. The framework underpinning this research merges Cipolle’s theory of critical consciousness development with disability-based constructs. Findings reveal that participation in IDS allowed participants to develop an awareness of their ability privilege, understand the experiences of peers with disabilities, increase their social awareness of disability, and consider their work as disability allies. This article concludes with recommendations for social justice educators who are interested in applying disability justice practices.     

Unruly bodies at conference

Academic conferences embody a set of prescribed regulative practices. This article considers some of the tensions that arise when these normative expectations are disrupted by unruly bodies. As scholars of disability studies we lament the lack of understanding within an ableist society that is resistant to change. In this article, however, I invite us to explore closer to home to consider how unruly bodies might enable reflection on how disability is created even within our own ‘expert’ environments. It is argued here that new ways of conceptualising and accommodating behaviour at conference are required if these are to exemplify the inclusive and welcoming spaces desired by us all.     

‘We swam before we breathed or walked’: able-bodied belonging in popular stories of evolutionary biology

This article introduces the concept of ‘able-bodied belonging,’ and pays particular attention to the cultural mechanisms in which ableism intertwines with the forms of belonging. Taking a cultural studies viewpoint, the article focuses on present evolutionary biological accounts, and explores the ableist and speciesist assumptions that frame evolutionary biology. The article investigates how these accounts invoke a feeling of belonging to the animal world in ways which reinforce the idea that only a particular kind of body is species-typical of humans. First, the article explores how the cultural stories that emphasize the connection between human beings and non-human species eventually distance particular bodies from humanity. Second, the article shows how humans’ connection to the animal world could emerge in a way that contests the exceptionality of able-bodied humanity.     

Exploring internalized ableism using critical race theory

This paper is an attempt to theorize about the way disabled people live with ableism, in particular internalized ableism. Typically literature within disability studies has concentrated on the practices and production of disablism, examining attitudes and barriers that contribute to the subordination of people with disabilities in society. My exploration occurs through examining the insights of critical race theory (CRT) and the contribution that CRT can further make to thinking through the processes, formation and consequences of ableism. A focal concern is the possible ways that the concept of internalized racism, its deployment in CRT and application to critical disability studies. The paper is interested in working through points of difference between the way internalized racism/ableism are mediated in the processes of subjectification and identifying points of convergence that can benefit dialogue across varied sites of scholarship. The author concludes that the study of ableism instead of disability/disablement may produce different research questions and sites of study.     

Not forgetting happiness: the tripartite model of disability and its application in literary criticism

This interdisciplinary article draws on the social sciences to posit a tripartite model from which literary research into disability can benefit. Ableism and disablism are defined by normative positivisms and non-normative negativisms respectively, but consideration is also given to non-normative positivisms. Informed by experiential knowledge, the model is illustrated with reference to a trilogy of literary representations of blindness: George Sava’s novel Happiness is Blind, Brian Friel’s play Molly Sweeney, and Stephen Kuusisto’s memoir Eavesdropping. The result is a complex reading that recognises problems but also non-normative renderings of happiness.     

From disability to ability: changing the phrasing of the debate

Persons with disabilities have endured discrimination and live under social apartheid. While enlightened people recognise the role that society has in disabling people with impairments, there remains a struggle to remove the negative stigma associated with this form of social diversity. There is no silver bullet that will enable persons with disabilities to exercise their human rights as full citizens. One strategy to assist in this struggle is the use of language. This paper focuses on how language can be utilised in the struggle against oppression. This paper reconsiders how disability discrimination is conceived and labelled. There is no uniformly accepted label to describe the discrimination and oppression that is explained by the social model or the non-radical social model. This paper explores how the labels of disableism and ableism have emerged to explain this concept. This paper analyses these terms and argues for the adoption of ableist nomenclature.     

Ableism in academia: where are the disabled and ill academics?

Recent coverage in higher education newspapers and social media platforms implies that chronic conditions, illnesses and disabilities are becoming more prominent amongst academics. Changes to funding structures, increased globalisation, marketisation and bureaucratisation of higher education have resulted in a performance-driven working environment where teaching workload and pressures to publish are further intensified due to excellence exercises in teaching and research. The result is low morale and an ever-rising number of reported mental health issues, burnout and stress-related illnesses within academia. This article explores some of these issues in the context of higher education institutions in the United Kingdom. We draw on our research and our experiences as speakers regarding ableism in academia to provide food for thought, stimulate a debate and raise awareness of those academics experiencing chronic illness, disability or neurodiversity, whose voices are not heard.     

‘We are not anything alike’: marginalization of health professionals with disabilities

Despite inclusive rhetoric, disabled peoples’ participation in the Health and Human Service (HHS) professions remains limited. This study explores the perspectives of individuals in the HHS sector regarding inclusion-related barriers and facilitators. We found three mechanisms that marginalize disabled people in HHS education and professions: dominant disabling discourses; discriminatory design within programmes and universities; and oppressive interactions. The inclusion of disabled individuals is vital for ensuring HHS professionals represent the populations they serve. By challenging the views of educators, professionals, and scholars, these findings may become part of the foundation upon which change can be created.     

Ableism,ambiguity, and the Anna Stubblefield case*

This article discusses the ongoing case of Anna Stubblefield, a former Rutgers University philosophy professor who was convicted of the sexual assault of an African American man with cerebral palsy. On appeal, the conviction was reversed, and as of this submission Stubblefield is awaiting news from the state of New Jersey Supreme Court as to whether there will be a retrial. This piece engages with Sherry’s article in this journal, and dissects the many layers of ableism at play in this case, arguing that justice will not be served until the alleged victim gets to be heard.