Freedom or Folly? Canadians and the Consumption of Online Health Information

The concept of e-health has come to assume a key place within a larger Canadian governmental discourse that lauds the benefits of supplying Internet-based services to as wide an audience as possible. In order to fulfil its vision of a connected public accessing services cheaply and easily through electronic media, the federal government has assumed that the potential exists for all Canadians to use the Internet and has done its best to achieve this result through programmes aimed at ameliorating accessibility issues. There is particular enthusiasm over the possibility of moving some health services online, thus reducing costs incurred through personal patient-practitioner meetings while ostensibly creating more informed, proactive and healthy Canadians. This paper discusses whether or not the enthusiasm of the government, and of individual users, regarding e-health practices is merited, focussing particularly on the consumption of online health information by patients. Numerous consequences and conflicts can accompany such practices, but this paper specifically addresses the negative aspects of promoting informed health choices through a medium inaccessible to all members of Canadian society, such as the aged, the poor, rural dwellers and some ethnic minorities. The paper also assesses the potential risks of acting upon incorrect information provided online and addresses the possibility that health professionals' workloads will increase rather than decrease. However, as this paper also notes, e-health does contain potential for improving the delivery of medical services in Canada if contained within clearly defined parameters, and if alternatives still exist for those who cannot or will not benefit from such technology.     

Understanding E-Mental Health Resources: Personality,Awareness, Utilization,and Effectiveness of E-Mental Health Resources Amongst Youth

The focus of this study is to replicate portions of the study by Neal, Campbell, Williams, Liu, and Nussbaumer (2011) to determine if their findings translate to Australian adolescents. Specifically, this study aims to: determine personality types as predictors of knowledge and utilization of e-mental health resources; identify subject usage rates of specific e-mental health resources; and identify subject views on the efficacy of these resources. Participants were an opportunistic sample of 1st-year university students (N = 176) between the ages of 18 and 25. A single session online survey was administered. The hypotheses that extroverted adolescents are less likely to have an awareness of e-mental health resources when compared to neurotic adolescents; and extroverted adolescents are less likely to engage in seeking help from e-mental health resources when compared to neurotic adolescents, were not supported. This study was unable to discern the efficacy of e-mental health resources or the sample's awareness of e-mental health resources. However, it was found that the sample was likely to engage in online help seeking behaviour for mental health concerns. Despite the limited findings, this study suggests several ideas that could be further explored.     

Turning to the Internet for Help on Sensitive Medical Problems

The purpose of the present study was to examine how members of an online bulletin board group concerned with sleep paralysis (SP) use the Internet to establish what it means to experience the symptoms associated with a mysterious sleep disorder. Data from 646 posts to the bulletin board, and from ten in- depth interviews with select bulletin board users, revealed that board participants constructed their disorder in three different ways: while some considered it a purely physiological problem, others believed it to be a demonic attack or a paranormal phenomenon. Results indicated that people suffering from SP are driven to the Internet by their desire to make sense of their terrifying nocturnal experiences. Rather than dispelling the myths surrounding this sleep disorder, the Internet in this study was, however, found to reinforce them by offering a forum for the discussion of alternative explanatory frameworks.     

电子健康模式下隐私保护的哲学思考

电子健康作为一种全新的医疗保健模式,代表着医疗保健发展的未来。发展电子健康的根本目的是提高医疗保健的效率,增强公众的医疗保健观念,提高公众的健康水平。如何在新型的医疗保健模式下保护病人的信息隐私,成为发展电子健康面临的主要挑战之一。本文主要对电子健康的隐私保护问题进行伦理探讨与哲学反思,并提出了电子健康的隐私保护的具体措施,旨在促进电子健康为人类带来更多的健康与福祉。     

Social Workers' Experiences of Virtual Psychotherapeutic Caregivers Groups for Alzheimer's,Parkinson's,Stroke, Frontotemporal Dementia,and Traumatic Brain Injury

ABSTRACT

The objective of this study was to examine the challenges for social workers who transition from facilitating face-to-face psychotherapeutic groups to online web-based video groups with family caregivers of persons with chronic disease. Study data consisted of survey responses of a group of therapists who had facilitated a series of web-based video-conferencing caregiver groups over a period of 4 years. All therapists were trained using an intervention training manual and weekly supervision. They received minimal training with regard to using technology (computers, Internet, web cams, and headsets). Despite reported challenges in how the technology affected the group process, therapists described overall positive experiences transitioning from face-to-face to working online. All therapists reported that group interactions and client outcomes in the Internet environment were overall comparable to those that occur in face-to-face groups.     

Health E-types?

This paper presents a simple typology of different forms of engagement with the Internet by families with children with various forms of chronic illness. The analysis is informed by ongoing debates about the nature, distribution and efficacy of reflexivity in contemporary social life, especially as it relates to the changing nature of information and knowledge. Drawing upon qualitative interviews with sixty-nine parents and sixteen children, the paper offers a nuanced account of the manner in which laypeople are engaging with e- health. It is an account that argues that any reading of the 'digital divide' that is based upon a simple homology between socio-structural location, reflexivity and differential ability to gain material purchase from information in the 'information age' is misjudged.     

Methodologic challenges of e-health research

In this article, research-based strategies used in a web-based study to assess the impact of participation in cancer-related mailing lists on cancer survivors and caregivers are highlighted. The paper presents alternative methods of measuring response rates in Internet surveys. Response rate estimation, based on American Association for Public Opinion Research guidelines, ranged between 15% and 24.9% for the study. Several strategies were implemented to increase survey participation and reduce item nonresponse. Few participants opted for a telephone survey as an alternative to a web-administered design (mixed-mode administration). Using time-stamp data to diagnose places in the questionnaire where respondents prematurely exited or broke off survey participation, we were able to decrease premature break offs. A lottery was also implemented to increase response rates. The experience of obtaining institutional review board approval for the lottery is also described. Preliminary data indicate slight increases in response rates subsequent to implementing the lottery.