‘No sugar’, ‘no junk food’, ‘do more exercise’ – moving beyond simple messages to improve the health of Aboriginal women with Hyperglycaemia in Pregnancy in the Northern Territory – A phenomenological study |
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| Institution: | 1. Menzies School of Health Research, Charles Darwin University, Darwin, Northern Territory, Australia;2. Indigenous Reference Group, Diabetes across the Lifecourse Northern Australia Partnership, Menzies School of Health Research, Northern Territory, Australia;3. Monash Centre for Health Research and Implementation, School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia;4. Endocrine Department, Royal Darwin Hospital, Darwin, Northern Territory, Australia;5. La Trobe Rural Health School, Bendigo, Victoria, Australia;6. Institute of Psychology, University of Copenhagen, Denmark;7. South Australian Health and Medical Research Institute, Adelaide, South Australia;1. Department Health Care, Knowledge Centre Brussels Integrated Care, Erasmus Brussels University of Applied Sciences and Arts, Laarbeeklaan 121, 1090 Brussels, Belgium;2. Faculty of Medicine and Pharmacy, Department of Public Health, Biostatistics and Medical Informatics Research Group, Vrije Universiteit Brussel (VUB), Laarbeeklaan 103, 1090 Brussels, Belgium;3. Faculty of Physical Education and Physiotherapy, Rehabilitation Research, Vrije Universiteit Brussel (VUB), Pleinlaan 2, 1050 Brussels, Belgium;4. Faculty of Medicine and Pharmacy, Department of Obstetrics and Prenatal Medicine, Vrije Universiteit Brussel (VUB), Laarbeeklaan 103, 1090 Brussels, Belgium;5. Department of Obstetrics and Prenatal Medicine, University Hospital Brussels, Laarbeeklaan 101, 1090 Brussels, Belgium;1. Department of Psychology, College of Healthcare Sciences, James Cook University, Australia, @BrianLaw_Psych;2. School of Human Sciences (Exercise and Sports Science), Faculty of Science, The University of Western, Australia;3. Division of Psychiatry, School of Medicine, The University of Western, Australia;4. Peel and Rockingham, Kwinana Mental Health Service, Western Australia, Australia;5. Ngala, Western Australia, Australia;6. Telethon Kids Institute, Western Australia, Australia;7. Cairnmillar Institute, Victoria, Australia;1. The University of the Sunshine Coast, 90 Sippy Downs Drive, Sippy Downs, Queensland, 4556, Australia;2. Southern Cross University, Gold Coast Airport, Terminal Dr, Bilinga, Queensland, 4225, Australia |
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| Abstract: | BackgroundGlobally, rates of hyperglycaemia in pregnancy are highest among Indigenous women. The highest prevalence has been documented among Aboriginal women in the Northern Territory of Australia. Despite knowledge of this for over two decades, there has been very limited examination of the specific needs and experiences of Aboriginal women regarding this condition.QuestionHow do Aboriginal women with hyperglycaemia in pregnancy understand and experience this condition, and how can their care be improved?MethodsA phenomenological methodology underpinned semi-structured in-depth interviews with 35 Aboriginal women and seven health professionals across the Northern Territory. Data were inductively analysed.FindingsThe findings revealed that in general, participants in this study could recite simple health messaging regarding diabetes (e.g. ‘no sugar’), but many lacked in-depth knowledge and this affected the management of their condition. Nevertheless, many identified pregnancy as a powerful motivator for change, signalling scope to improve health messaging. Women consistently expressed the need for diabetes education that was culturally appropriate, a clear desire for maternity care that was family-centred, based on respectful relationships with the same care provider, and respected Aboriginal ways of knowing and being.ConclusionExisting health messaging around hyperglycaemia in pregnancy has limited reach with Aboriginal women in the Northern Territory. Reducing the burden of hyperglycaemia in pregnancy among these women requires a sustained commitment to redesign of maternity and diabetes care to incorporate the cultural and social context of women’s lives. |
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| Keywords: | hyperglycaemia in pregnancy gestational diabetes health literacy maternal health health workforce health education |
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