Experience of hope: An exploratory research with bereaved mothers following perinatal death |
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| Institution: | 1. Département des sciences infirmières, Université du Québec en Outaouais, Gatineau, QC, Canada;2. Department of Maternal-Infant and Public Health Nursing, University of São Paulo at Ribeirão Preto College of Nursing, Ribeirão Preto, SP, Brazil;3. Département des sciences infirmières, Université du Québec en Outaouais, St-Jérôme, QC, Canada;1. University Centre for Rural Health, The University of Sydney, Lismore, New South Wales, Australia;2. Australian Centre for Health Engagement, Evidence and Values (ACHEEV), School of Health and Society, University of Wollongong, NSW, 2522, Australia;3. Sydney Nursing School, The University of Sydney, Sydney, New South Wales, Australia;4. School of Public Health, The University of Sydney, Sydney, New South Wales, Australia;1. Huddinge University Hospital, Huddinge, Sweden;2. Sophiahemmet University, Stockholm, Sweden;1. TCD School of Nursing & Midwifery, Trinity College Dublin, Ireland;2. University of Lausanne, Switzerland;3. UCD School of Nursing, Midwifery & Health Systems, University College Dublin, Ireland |
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| Abstract: | ProblemThe negative implications of perinatal death on mothers’ mental health are documented, however little is known about their experience of hope.BackgroundWithin the broader literature, hope has contributed to better mental health and bereavement adjustment and often bereaved mothers report the importance of hope for the grieving process.AimThis study aims to explore bereaved mothers’ experience of hope following perinatal death.MethodsIndividual interviews were conducted with 33 mothers having experienced the death of an infant in the perinatal period. Data from the interviews were analysed using thematic analysis.FindingsThe mothers’ experience of hope following perinatal loss is organized into three themes: Hope disrupted by perinatal loss; Transformed hope: a new pregnancy challenged by the sense of foreboding of another loss; and Ways to restore and foster hope in life.DiscussionAlthough hope has been a motivating force for mothers to reconnect with their life plan and move on after a loss, it is also negatively affected by the experience of perinatal bereavement, social support, and health professionals’ clinical practice.ConclusionBereaved mothers have reported a disruption in their experience of hope. While some experience a loss of hope or a sense of hopelessness, others experience a transformation and restoration of hope, which is reinvested in the grieving process. Mothers’ experience of hope highlights the need for the support of a healthcare professional and may contribute to enhanced clinical practice through the promotion of bereavement care, considering the aspects that instil, maintain, and interfere with hope. |
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| Keywords: | Perinatal death Bereavement Women Hope Hopelessness Qualitative research |
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