Specifying and facilitating family involvement in services to persons with developmental disabilities

This paper recognizes the important role of family involvement in services to people with developmental disabilities. The paper presents a conceptualization of involvement that was an outcome of a qualitative study of involvement from the perspective of family members themselves. The authors identify a framework of family involvement the composition of which incorporates four system levels (i.e. the individual, program/agency, community, society) and the five role opportunities for family members (i.e. treatment agent, planner, advocate, evaluator, and consultant/educator). Barriers to involvement are then delineated and the authors autline a process for promoting family involvement: 1) contracting for involvement; 2) developing a support system for involvement; and 3) monitoring and evaluating involvement.Presented at the Fourth Annual Conference of The Michigan Chapter, National Association of Social Workers, May 14, 1988. Grand Rapids Michigan.The writing of this paper was supported in part by a research stimulation grant awarded to the authors by Wayne State University. Portions of this article are included in an extensive research report in Epstein, I and Grasso, A. Editors,Research Utilization in Social Work, Wayne State Univesity Press, in Press.