Participatory Research by Niigata Minamata Disease Victims, and Empowerment of These Victims

Abstract:  Niigata Minamata disease is the result of environmental pollution. In the present paper I discuss the activities conducted thus far by victims (uncertified patients) of Niigata Minamata disease to receive the necessary physical and medical examinations, as well as requests for administrative appeal. Such activities, stemming primarily from efforts being made in Sentoji of Yasuda Town (Agano City at present), have had relevance in the lawsuits of uncertified patients of Minamata disease. Those who participated in these activities, even those who are not plaintiffs in the corresponding court cases, were able to receive a set amount of financial and medical support following a political settlement related to Minamata disease. As of 2005, the movement has been assisting people who visit the Agano River basin area to learn about Niigata Minamata disease, and approximately half of all victims manifesting symptoms of the disease have had some association with the Sentoji movement. I also examine how the activities being conducted in Sentoji have helped victims learn more about their own bodies, and how these activities have also helped people understand the significance of taking the initiative to become involved in such movements. And I examine how victims of the disease have received empowerment through victim movements.