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Realizing autonomy: the phenomenology of independence and interdependence while living with Duchenne muscular dystrophy |
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| Authors: | Adi Finkelstein Esther-Lee Marcus |
| Institution: | 1. Department of Nursing, Faculty of Life and Health Sciences, Jerusalem College of Technology, Jerusalem, Israel;2. Medical Humanities Program, The Hebrew University – Hadassah School of Medicine, Jerusalem, Israel;3. Medical Humanities Program, The Hebrew University – Hadassah School of Medicine, Jerusalem, Israel;4. Geriatric Division, Herzog Hospital, Jerusalem, Israel;5. The Legacy Heritage Fund Independent Living Neighborhood, Alyn Hospital, Jerusalem, Israel |
| Abstract: | |
| Keywords: | Duchenne muscular dystrophy qualitative methodology interdependence autonomy reflexivity progressive illness |