Caregiving for relatives with Alzheimer's disease: feelings of Chinese-Canadian women |
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| Institution: | 1. Recovery Rehabilitation Management Inc., Nepean, Ontario, Canada;3. Department of Sociology, University of Akron, Akron, Ohio, USA;1. Pacific Northwest National Laboratory, 902 Battelle Blvd., P.O. Box 999, Richland, WA 99354, USA;2. Division of Radiobiology, School of Medicine, University of Utah, Salt Lake City, UT 84112, USA;1. Department of Histopathology, LabPLus, Auckland City Hospital, Auckland, New Zealand;2. Department of Renal Medicine, Counties Manukau District Health Board, Auckland, New Zealand;3. Faculty of Medical and Health Sciences, University of Auckland, Auckland, New Zealand;1. Hadassah Medical Center, Tissue Typing and Immunogenetics, Jerusalem, Israel;2. Bioinformatics Research, Center for International Blood and Marrow Transplant Research, Minneapolis, MN, USA;1. Student Research Committee, School of Health Management and Informatics, Shiraz University of Medical Sciences, Shiraz, Iran;2. School of Health Management and Informatics, Shiraz University of Medical Sciences, Shiraz, Iran;3. Social Determinants of Health Research Center, Guilan University of Medical Sciences, Rasht, Iran;4. Shiraz University of Medical Sciences, Shiraz, Iran;5. Health Economics Unit, School of Health Management and Informatics, Shiraz University of Medical Sciences, Shiraz, Iran;6. School of Pharmacy, Tehran University of Medical Sciences, Tehran, Iran;1. Department of Disaster and Comprehensive Medicine, Fukushima Medical University School of Medicine, Fukushima, Japan;2. Department of Neuropsychiatry, Fukushima Medical University School of Medicine, Fukushima, Japan;3. Department of Emergency Medicine Saitama Medical Center, Saitama Medical University, Saitama, Japan;4. Department of Psychiatry, Aizu Medical Center, Fukushima Medical University School of Medicine, Fukushima, Japan;6. Departments of Psychiatry and Medical Education, Icahn School of Medicine at Mount Sinai, New York, NY |
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| Abstract: | Chinese-Canadian female caregivers were asked about their feelings of providing care for relatives with Alzheimer's disease. Using an adapted version of the conceptual model of Alzheimer's caregivers' stress by Pearlin et al. Gerontologist 30 (1990) 583] to guide data collection, 12 in-depth interviews were conducted in Cantonese. Qualitative analysis was inductive and done manually. Despite anticipating and accepting their caregiving role as a cultural obligation, they, like most caregivers, felt overwhelmed, anxious, and fearful of the future. Against their stated cultural and personal values, all caregivers had made applications to nursing homes, and six were ready to institutionalize their relatives when a place became available. While coping mechanisms and social support appeared to mediate their stress, participants' concerns about the influence of western culture on traditional values and in particular, intergenerational issues regarding caregiving provided an added burden. Findings are particularly relevant given the rapid growth of the Chinese population in North America. |
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