Honourable Sacrifice: A Visual Ethnography of the Family Lives of Korean Children with Autistic Siblings |
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Authors: | Se Kwang Hwang Helen Charnley |
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Institution: | 1. PhD candidate in applied social sciences SASS, Durham University, Durham, UK;2. Lecturer in applied social sciences SASS, Durham University, Durham, UK |
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Abstract: | Literature on the siblings of disabled children has been dominated by western psychosocial theories that focus on stresses associated with being a ‘young carer’ or on children as active agents realising their ‘rights’ rather than as the victims of familial expectations. This article presents the findings of a visual ethnographic study exploring the lives of nine children living with an autistic sibling in South Korea (hereafter Korea). Despite personal challenges and family tensions, experiences of ‘being’ a sibling were strongly influenced by Confucian familist cultural values in which sacrifice plays a central role in achieving honourable and harmonious family life. |
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