| Abstract: | The topic of this paper is the change of perspective from the concept of “coping with illness” in a psychological sense to a concept of coping as “living with (chronic) illness” in a sociological sense. Whereas psychological and even some sociological research presupposes assumptions on causes and essentials of stress as well as on successful coping, we focused on the different ways, in which subjects define strain and their personal aim of coping. These subjective views might differ from the definitions of scientists as well. Furthermore we focus on the social constructions of illness and “normal living” and the social rules of coping with daily hassles, which underlay the subjective views. Assuming that the ways chronically ill resp. disabled persons look at stress and daily hassles is part of their coping, we conclude that stress and coping are mutually constituting each other. This dialectic process is influenced by the persons current situation, by the individual’s history and by cultural rules concerning appropriate coping resp. living with strain in general. Looking at these social rules and how they are modified under the conditions of illness and handicap was the topic of our research project “LIVE—Living and Defending Your Interests—Disabled Women”, financed by the German Fed. Ministry for Family, Seniors, Women and Youth and conducted 1996–1998. In this study a questionnaire was sent to 16 to 60 years old disabled women (return: N=987). Additionally a qualitative interview was conducted with N=60 of them. From a biographical approach the reconstruction of the main subjective patterns in their life histories led us to the social rules of appropriate “coping”. We can take this as a starting point for a sociological discussion of everyday living with chronic illness, that focuses on the social constitution of subjective meanings of stress resp. coping with illness, includes the social context and allows to integrate the gender perspective. |
