Parents,services and system: an exploration of power dynamics in future planning among parent carers for people with disability |
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Authors: | Andrea Petriwskyj Jill Franz Barbara Adkins |
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Institution: | 1. School of Nursing, Midwifery and Social Work, The University of Queensland, Brisbane, Australia;2. School of Design, Queensland University of Technology, Brisbane, Australia |
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Abstract: | Interactions between services and families have significant implications for families planning for the future needs of a family member who has a disability. However, little research interrogates the implications of these relationships for parent carers’ agency in this planning. This qualitative study explored parents’ experiences with public and not-for-profit services during planning. Findings revealed varied and fluid power dynamics, with attempts by carers to shift to more productive power relations, which carried risks and costs. In a context characterised by systemic constraints, these shifts create an iterative planning process, and highlight the need to support parents to use power productively. |
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Keywords: | Parent carers services power planning service providers |
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