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Ethnicity and Caring for a Disabled Child: The Case of Children with Sickle Cell or Thalassaemia
Authors:AHMAD  WAQAR I U; ATKIN  KARL
Abstract:Correspondence to Waqar Ahmad or Karl Atkin, Ethnicity and Social Policy Research Unit, University of Bradford, Bradford, BD7 1DP, UK Summary Services for haemoglobinopathies have been a major site of strugglesfor the black communities, yet the social research literatureon haemoglobinopathies remains patchy and fragmented. We providean overview of the literature on sickle cell disorders and thalassaemiamajor in the broader context of debates on childhood disabilityand chronic illness, and on ethnicity, racism and health care.
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