The Characteristics of Children with a Disability Looked After away from Home and their Future Service Needs

Correspondence to Professor Roy McConkey, School of Nursing, University of Ulster, Newtownabbey, N. Ireland BT37 0QB. E-mail: r.mcconkey{at}ulster.ac.uk Summary Little is known about the characteristics of children with disabilitieswho meet the British legal definition of ‘looked after’children. Data were obtained on 108 such children living withinone geographical area in Northern Ireland and who spent 90 daysor more in a 12-month period living away from the family home.However, this figure may under-estimate the numbers, given thedifficulties in tracking children aged over 14 years who wereadmitted to hospitals on a short- or long-term basis. The medianage of the children was 14 years; most had learning disabilitiesallied with challenging behaviours, communication difficulties,autism and some were technologically dependent. Many of theirfamilies experienced a range of problems. One-third of the childrenwere accommodated in various residential settings but half ofthese placements were in hospital or adult residential accommodation.However, there were marked differences in the services providedto this client group by the four provider agencies. Future serviceneeds included increased respite breaks for families and theprovision of both more residential placements and more appropriateaccommodation, especially for teenagers. The dilemmas in reconcilingthe need for local, but specialized, service provision are discussed.