Reviewing changes to the Child Disability Allowance: Giving parents a voice

Abstract

The Diabetes Clinic at Princess Margaret Hospital for Children has been concerned at the impact of changes made in 1998 to eligibility for the Child Disability Allowance on families caring for a child with diabetes. A survey of those families was conducted to obtain their views on the changes. Results showed the number of families receiving Child Disability Allowance since the changes has significantly declined. Parents indicated the allowance should be automatic for children with insulin dependent diabetes as the disability is chronic, incurable, requires extra care and attention, and is a financial and emotional burden for families. Many felt the application process was unjust, incomplete and inadequate. The results formed part of a submission to the Department of Family and Community Services evaluation, giving parents a voice in this process. This project illustrates the capacity of social workers to attempt to impact on social policy within the context of their clinical practice.