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The family caregiving context among adults with disabilities: A review of the research on developmental disabilities,serious mental illness,and traumatic brain injury
Authors:Concepcion Barrio  Mercedes Hernandez  Lizbeth Gaona
Affiliation:1. School of Social Work, University of Southern California, Los Angeles, California, USAcbarrio@usc.edu;3. School of Social Work, University of Southern California, Los Angeles, California, USA
Abstract:ABSTRACT

A majority of adults with serious disabilities are cared for in the home by family members. Guided by an ecological framework, this article presents the findings of a literature review of research on family caregiving and family support for adults with disabilities. This review included 33 research studies published between 2000 and 2015 focused on three disabilities: Developmental disabilities, serious mental illnesses, and traumatic brain injury. A synthesis of the findings underscores the critical role that family caregivers occupy in addressing the needs of their loved one with a disability; however, the needs of the caregiver are insufficiently met by existing service approaches. A better understanding of the unique needs and strengths of the family support context of caregivers and care recipients is needed, giving greater attention to ethnic, racial, and cultural considerations in future research.
Keywords:Burden  caregiving  developmental disability  serious mental illness  traumatic brain injury
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