Stories of AIDS: The use of narrative as an approach to understanding in an AIDS support group

This paper shows how the co-creation and telling of narratives helped members of an AIDS support group transform their unique and separate experiences of suffering into shared insights, intense connections and comfort. Examples of narratives are drawn from the author's experience as a co-leader of a support group for gay men living with AIDS. Current literature on group work with persons living with AIDS is embedded in a modernist orientation in which the therapist is the scientist/expert, the client has the problem and the therapist helps the client's through exploring and interpreting the client's story according to a superseding theory (Gergen and Kaye, 1992). This approach emphasizes the need for leaders to maintain objectivity and emotional distance to avoid burnout (Gabriel, 1991; Grossman and Silverstein, 1993; Tunnell, 1991). In contrast, in a post-modern therapeutic approach, there is no privileging of the therapist's narrative and the traditional hierarchical relationship is replaced by a mutual effort as therapist and client together develop stories that translate and transcend experience. Using the AIDS work as illustration, this paper offers a post-modern, narrative approach to group work and shows how persons living with AIDS can use narrative to move beyond finite structures and the limits of life.This paper couldn't have been written without the help of the group members and my co-leader Sally Bowie. I want to thank them and other friends and colleagues-particularly the members of my Philosophy Study Group for their suggestions and support.The paper is dedicated to the memory of Jack, Paul, Mark, Alex, Richard, Hugh, Stan, Tim, Michael and Bill—all members of the group who have died and to Dean who, though not a member of the group, also died of AIDS and like the others—taught me much about dignity and courage, about being gay and about living with AIDS.