The dynamics of support over time in the intentional support networks of nine people with intellectual disability |
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| Authors: | Anne Hillman Michelle Donelly Angela Dew Roger J Stancliffe Louise Whitaker Marie Knox |
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| Institution: | 1. Faculty of Health Sciences, University of Sydney, Lidcombe, NSW, Australia.;2. School of Health and Human Sciences, Southern Cross University, Tweed Heads, NSW, Australia.;3. Centre for Disability Studies, Sydney Medical School, University of Sydney, Ryde, NSW, Australia. |
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| Abstract: | This paper describes the dynamics of support observed in the networks of nine adults with intellectual disability, developed by families who had committed to achieving a ‘good life’ for this person. Network members, including the person with a disability, participated in this longitudinal ethnographic study. Three principles that underpinned their work were positive and respectful relationships, mentorship and providing opportunities and expectations. Participants worked actively with other network members to develop higher levels of autonomy and social participation. |
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| Keywords: | intellectual disability reciprocity support networks relationships community living participation |
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