Positioning,strategizing, and charming: how students with autism construct identities in relation to disability

Contrary to views that young people with the label of autism are incapable of engaging in collective cultural practice, this article examines how they construct identities through social interactions to belong, compete, and participate. In a multi-sited ethnography of high school students with disabilities, we focused on two students as they move across contexts of school, debate team, and home. Over two years of interviews and participant observation, these students demonstrated nuanced efforts to distance themselves from the ‘autistic’ label. These acts of positioning illuminated how they negotiate identities with the knowledge their interactions shape how people perceive their participation in different contexts. By following them across informal and formal environments, we could see how they transition across multiple social worlds and appreciate the combined power these contexts have on youth identity.     

Autism across cultures: rethinking autism

Whereas the autism prevalence rate has been very closely monitored in the United States, the same has not been observed in many other countries. This may be attributed to the fact that each culture views and defines autism differently. Using field notes and semi-structured interviews with family members with an individual with autism, teachers, and professionals in Canada, Nicaragua, and Korea, this paper illustrates how autism is socially differently constructed in these distinctively different cultures. Observing and experiencing what autism means in different cultures urge us to accept and appreciate individual differences or ‘differ-bilities’ in the diverse twenty-first century.     

‘You’ve got autism because you like order and you do not look into my eyes’: some reflections on understanding the label of ‘autism spectrum disorder’ from a dishuman perspective

The psychiatrists and health professionals who ‘updated’ the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders in 2013 changed how ‘autism’ is meant to be interpreted. For example, Asperger’s disorder merged into an overall collective of ‘autism spectrum disorders’, rendering Asperger’s non-existent as a separate disorder. Yet the terms ‘Asperger’s’, ‘autistic’ and ‘autism’, in general, are used on a daily basis by people who have been diagnosed/labelled in this way over the course of their lives, or indeed are used by people to label others in stereotypical and prejudicial ways that leads to their marginalisation. With this thought in mind, the author briefly reflects on his own experiences of being labelled with ‘Asperger’s’ or as being ‘autistic’ (a label he rejects), whilst thinking from a ‘dis/human’ perspective, a viewpoint that seeks to unpack and challenge the dominant concepts of what it means to be human in the twenty-first century. While it is difficult to avoid being labelled in ways that lead to discrimination and rejection, a dishuman perspective offers a viewpoint against the narrow versions of what it means to be human, relating to how disability can trouble the notion of what it means to be human and indeed inform the very meaning of what it means to be human.     

‘If I was a different ethnicity,would she treat me the same?’: Latino parents’ experiences obtaining autism services

This article reports on an ethnographic study with 12 Latino families of children on the autism spectrum related to obtaining autism services in Los Angeles County. Using critical discourse analysis of interviews, observations, and records, we consider the experiences of the Latino families in relation to: a discursively constructed ‘autism parent’ subject position that mandates ‘fighting’ service systems to ‘win’ autism services for children, originating from White middle-class parents’ socioeconomic resources and social capital; a neoliberal social services climate that assumes scarcity of available resources and prioritizes austerity in their authorization; and a media and institutional ‘cultural deficit’ discourse that attributes disparities in autism services for Latino children to their parents’ presumed culturally-based ‘passivity.’ We argue that parental discourse about fighting, or not fighting, for autism services is engendered by a tension between a parental logic of care, and the logic of competition of the economic market.     

Re-approaching interview data through qualitative secondary analysis: interviews with internet gamblers

ABSTRACT

This paper addresses two interrelated questions concerning what interview data are and how researchers might use them. The first considers the value of a shift from a predominant or exclusive focus upon how data are constructed and produced at interview, and towards how such data might be apprehended through different forms of engagement. The second question relates to how and what qualitative secondary analysis (QSA) might be used to tell about the social world. In exploring this, we advance a critique of the divide between primary and secondary analysis, recasting the debate in terms of different degrees and qualities of ‘proximity’ and ‘distance’ from the formative contexts of data generation, and the distinctive analytical affordances that relate to these. Using QSA of interview data from a study of problem internet gambling as an empirical crucible, we consider the kinds of participation that interviewees develop through reciprocal engagement with interviewers. We illustrate how participants reflexively negotiate the affordances and limits to the narratives through which they frame and recount their experiences. Finally, we show how interview data can be used both to speak of the temporal, relational, spatial, epistemic contexts of their production, and also to contexts and questions beyond these.     

Natural relations: horses,knowledge, technology1

Maintaining the tensions and divisions between the human and non‐human, nature and culture has been a mainstay of Euro‐American thought. Drawing upon two studies of people's associations with horses, we examine how these divisions are being reworked in the social sciences as well in everyday life. We focus on how different ideas about ‘horses’, ‘horsemanship’ and how knowledge is acquired, accomplishes different social worlds. Specifically, what emerges in these differential discourses is that a paradox is put into play to make a distinction between traditional and contemporary ways of being in relation to nature and the animal; it is the paradox of what we want to refer to as ‘natural technologies’. We suggest that the paradox of ‘natural technologies’ is a proliferating feature of Euro‐American cultural life that troubles old divisions between nature and culture and propose that it indicates less about a politics of nature than a politics of culture. Specifically, we show that the preoccupation with bringing nature, and the non‐human, more into alignment with the human promotes ethics and equality as matters of lifestyle choice to the exclusion of very specific ideas about tradition, hierarchy, evolution and socialization.     

Storying transition-to-work for/and youth on the autism spectrum in the United States: a critical construct synthesis of academic literature

We explored how academic literature constructs the ‘worker with autism.’ Drawing on a systematic review of transition to work for youth with disabilities, we analyzed how 17 articles constructed ‘autism,’ ‘work,’ and the ‘worker with autism.’ We identified two argumentative approaches: the intervention story and the complex story. Intervention stories centered autism as a problem in need of treatment and work as a simple, positive endeavor. Complex stories offered various and more positive accounts of autism alongside broader notions of work. We recommend that academics experiment with writing which expands work (and career) possibilities for youth situated on the autism spectrum.     

Strangers asking strange questions? A methodological narrative of researching belonging and identity in English rural communities

This paper emerges from a current research project that examines the relationship between contemporary English rurality and notions of identity and belonging. While this is primarily a methodological narrative we argue that this narrative speaks to an analysis of current rural relations. The paper concerns itself with two key methodological issues that have arisen during the ‘doing’ of the research. First, it examines our own relationship, as ‘outsider’, urban-based researchers, to the rural and the use and/or relevance of our biographies as resources for making ourselves seem less ‘strange’ and for accessing, and being in, rural environments. At the same time as providing us with a map into our micro rural worlds the paper draws on this biographic-research relation in order to problematize notions of homogenous rural identities and polarized rural/urban identities. The second part of the paper argues that who we were/how we were perceived had a relation to what ‘truths’ and accounts we were told by our respondents. More particularly, we show how our use of focus group interviews had a direct role in the rehearsal and presentation of these ‘truths’. Given the current contestations and tensions over what and who ‘the rural’ is, it was clear that those involved in the focus group discussions wanted to give us particular stories that often fell into a consensus pattern of either ‘rural idyll’ or ‘rural crisis’ narratives. Drawing on Simmel's notion of the stranger and focus group data we argue that for these narratives to be told we, as researchers, were ascribed by the group members to shifting positions of intimacy and remoteness.     

Doing it differently: emancipatory autism studies within a neurodiverse academic space

Abstract

In the current research climate, in which many autistic and autism communities are increasingly calling for a move towards collaborative forms of research, we consider how a loosely formed epistemological community may serve to challenge ‘business as usual’ in the academy. Mindful of the need to move beyond theory, we use this experience to concretely consider how knowledge about autism and neurotypicality can be meaningfully (co)-produced, and made available both to the research community and also to autistic and autism communities. Here, we use our own co-production of this article to explore how autistic experience may trouble normative meanings of academic knowledge production. We also consider the limits and possibilities of a neurodiverse research collaboration to reflect on ways in which a loose epistemological space may serve to contribute to knowledge about both autism and neurotypicality, adding to debate around collaborative research.     

Political Participation and Late-Life Learning: A Cross-Cultural Study of Older People’s Participation in Seniors’ Interest Organisations in Australia and Spain

Understanding what older people learn from their civic participation is of critical importance both for individuals and organisations. This link has been neglected in prior research, and the evidence across diverse cultural contexts is particularly limited. However, the political context of older people’s life experiences and participation is important in their participation. The intent of the present study is to explore the learnings experienced by older people through participation in seniors’ interest organisations, across Australia and Spain. Participants included 52 active members of political organisations focused on issues for older people. A questionnaire was used for data collection; participants’ responses to an open-ended question regarding what they have learnt from their participation in seniors’ interest organisations are analysed here. Participants’ answers were subjected to a multi-stage thematic analysis. Findings show three key themes relating to learnings about themselves, such as self-improvement or skills or knowledge; learnings about others, such as cooperation with others and understand that people have different views; and learning about society, such as inequality and the need to fight for injustice. The findings suggest some interesting similarities and differences across contexts, which appears to reflect the different political contexts of the two countries.     

On the ontological status of autism: the ‘double empathy problem’

In recent decades there has been much debate over the ontological status of autism and other neurological ‘disorders’, diagnosed by behavioural indicators, and theorised primarily within the field of cognitive neuroscience and psychological paradigms. Such cognitive-behavioural discourses abstain from acknowledging the universal issue of relationality and interaction in the formation of a contested and constantly reconstructed social reality, produced through the agency of its ‘actors’. The nature of these contested interactions will be explored in this current issues piece through the use of the term the ‘double empathy problem’, and how such a rendition produces a critique of autism being defined as a deficit in ‘theory of mind’, re-framing such issues as a question of reciprocity and mutuality. In keeping with other autistic self-advocates, this piece will refer to ‘autistic people’, and ‘those who identify as on the autism spectrum’, rather than ‘people with autism’.     

The Integration of Personal and Professional Selves: Developing Students' Critical Awareness in Social Work Practice

How social work students incorporate personal and professional selves in the contexts of field education represents a cornerstone of effective and sustainable practice. This paper presents a qualitative component of a study that tracked 15 third-year bachelor of social work students across their first field placement to document their use of self, critical reflections and experiential learning. The project examined students' assessed ‘use of self’ assignments to understand their capacity for and development of critical awareness across this placement. Students were most articulate in being able to identify stressful situations that arose from placement in terms of what they were thinking (mind) and feeling (emotion) and to a much lesser extent to what they were sensing (body). Over time, students demonstrated a growing critical awareness to better identify and respond to their self-reported tensions. The findings provide developmental insights into how students integrate personal and professional selves and potentially shift from reflective and reflexive practices to incorporating praxis in their work. Through considering the linkages between self and practice, this paper explores student experiences whilst on placement and the associated developmental tasks of critical awareness.     

‘Bring down the controlled movements!’ – exploring the possibilities of and limitations on achieving embodied agency in ballet and fashion

This paper explores the subtleties of exercising embodied agency within two contexts shaped by ideals and norms: ballet and fashion. Here, we focus on how dancers and models rehearsing offstage towards onstage performances negotiate their potential and limitations for achieving agency over and over. Whereas a ‘turn to embodiment’ has occurred within organization studies, less is known about how embodied agency is choreographed and practised between visible front stages and ‘hidden’ offstages, or in relation to the various human and non-human agents present in the field. The empirical material of this paper is derived from two separate ethnographic studies. By combining insights from the two contexts, we make a joint effort to explore a complex phenomenon in more detail. This paper develops our micro-level understanding of embodied agency as a relational endeavour, and offers insights into the surprisingly ‘a-mobile’ discussion of embodied practices within organization studies.     

Representations of autism in Australian print media

The mass media provides a frame for discourse around important health issues, and it has been widely demonstrated that the development and reinforcement of stereotypes of minority groups are strongly influenced by the news and entertainment media. An extensive search of academic databases failed to locate any studies which examined the representation of autism in the news media, although there were a number of articles on the media role in the autism and MMR debate. This paper reports on an examination of the extent, and nature, of coverage of ‘autism spectrum disorders’ in the Australian print media between 1996 and 2005. Key findings include a relatively limited amount of factual information and a dual stereotype of people labeled as having autism as either dangerous and uncontrollable or unloved and poorly treated. The paper concludes with a discussion of the implications of the nature and tone of this coverage of autism and its potential impact on individuals described as ‘autistic’, their families and carers and the community in general.     

Issues of collaboration,representation, meaning and emotions: utilising participant-led visual diaries to capture the everyday lives of people in mid to later life

In recent years there has been an increasing use of visual methods in ageing research. There are, however, limited reflections and critical explorations of the implications of using visual methods in research with people in mid to later life. This paper examines key methodological complexities when researching the daily lives of people as they grow older and the possibilities and limitations of using participant-generated visual diaries. The paper will draw on our experiences of an empirical study, which included a sample of 62 women and men aged 50 years and over with different daily routines. Participant-led photography was drawn upon as a means to create visual diaries, followed by in-depth, photo-elicitation interviews. The paper will critically reflect on the use of visual methods for researching the daily lives of people in mid to later life, as well as suggesting some wider tensions within visual methods that warrant attention. First, we explore the extent to which photography facilitates a ‘collaborative’ research process; second, complexities around capturing the ‘everydayness’ of daily routines are explored; third, the representation and presentation of ‘self’ by participants within their images and interview narratives is examined; and, finally, we highlight particular emotional considerations in visualising daily life.     

Research note: Promoting intercultural education through art education

Taking UNESCO’s proposal ‘learning how to live together’ as a starting point, we examined to what extent visual education can be used as a tool to promote the aims of intercultural education. We analyzed the power of using artistic images from different cultures to change students’ perception of cultural differences, thereby facilitating the development of attitudes of respect towards different ethnic/cultural groups. We also investigated to what extent this strategy could contribute to the integration of minority peers into a majority group. Students were assigned to either an experimental or a control group. The experimental treatment consisted of exposing students to several art object images associated with different cultures. Our measurement instrument was based on an adapted version of the ‘Draw‐A‐Person‐Test’, which we have called the ‘Draw‐Two‐Persons‐Test’. We also used a questionnaire to examine attitudes among subjects     

Validating difference and counting the cost of exclusion in the lives of people who identify as on the autistic spectrum

This current issues piece will explore how autobiographies written by people with autism can help identify sensory processing differences that might be viewed as possible attributes in an enabling society, but for which ableist perceptions are often negative. In concrete terms, these constructions may be preventing people from entering employment and making an economic contribution. The first autobiography written by someone who identified as being on the autism spectrum was by David Eastham in 1985. Since then, over 50 such books have been published. The emergence of such autobiographies challenges assumptions about what it is to be on the autism spectrum. It was often assumed people with autism were incapable of such social communication, as autobiographies assume abilities such as self-awareness, imagination and the ability and desire to communicate. These were all traits that were thought to be absent in someone diagnosed with autism. Consequently, the presence of these autobiographies destabilises and questions the dichotomy that was set up between what constitutes ‘normal’ and ‘abnormal’ behaviour.     

Teaching tourism in Jamaica: developing students’ critical consciousness and intercultural competence

Within this article, we convey ideas about stereotypes and ethnic supremacy that many university students tend to hold about Jamaica and the challenges of disabusing travellers of these notions and to achieve educational goals related to equity, diversity and inclusivity. We explore the concept of the tourism imaginary and key ideas in critical pedagogy, critical literacy and critical race theory that guided our course development, and we explain how we used these concepts as a framework for building intercultural competence within our student population. By addressing the complexities of Jamaica’s transnational cultural identity and using tourism to deconstruct the idea of experiencing an ‘authentic’ Jamaica, this two-part immersion course works to shift student consciousness from racial and ethnic superiority to a place of intercultural competence.