An Ecological Understanding of Caregiver Experiences in Palliative Care

Palliative care is specialized health care to improve quality of life for patients with serious illness and their families through prevention and relief of suffering. A Palliative Care Institute was held in western Washington to capture community voices about diverse needs, strengths, and opportunities for improvement of palliative care. Researchers employed qualitative methods to obtain thematic data, provide real-time analysis, and engage in a multivoting technique to reflect stakeholder interest in individual themes and prioritize larger group interests. Bronfenbrenner’s ecological systems framework was used to explore caregiver experiences. Within the microsystem, caregivers reported difficulties in interactions with medical providers as a key challenge. Within the mesosysytem, interactions between patients and medical providers and the impact on caregivers were explored. Within the exosystem, caregivers reported lack of control over the schedules of personal care staff. Macrosystem influences included impact of local culture on the development of palliative care services. Chronosystem influences include de-medicalization of childbirth and its impact on perceptions of palliative care. Implications include the need for social workers to be proactive in fostering trust and effective communication between care providers and caregivers, and the demand for health care provider training in communication with patients and families.     

中国社会传统家庭伦理父子关系的现代扬弃

中国封建社会伦理之中,积淀了丰富的以＂尊亲＂、＂顺亲＂、＂养亲＂等为主要内容的父子伦理精义;在中国社会结构由金字塔型演变为橄榄型、步入了后喻社会时代的今天,封建社会时代形成的许多父子伦理内容和沟通模式已不适合当今社会时代的发展要求。在今日中国社会伦理系统之中,应该建立新型的父子伦利（互利）关系。这既需要借鉴现代社会的＂互喻＂模式,又要采补传统伦理的精髓内容。     

北宋东莱吕氏家族婚姻考论

北宋东莱吕氏家族既与宰辅大族联姻,也选择有发展前景的新进士为婿或姻家,从而形成了一个个盘根错节的庞大政治集团,藉此长期维持其家族的社会地位和政治利益,并对北宋政治产生重大影响。     

How Moroccan‐Dutch parents learn in communities of practice: Evaluating a bottom‐up parenting programme

Research shows that top‐down‐designed parenting programmes do not always meet the needs of postmigration parents. Bottom‐up programmes by migrant organizations hold a promise to fill this gap; however, research about these programmes and appropriate evaluation methodologies is scarce. Drawing upon Wenger's ( 2010 ) “communities of practice,” this paper explores an alternative perspective on parenting programme evaluation. Findings are presented from a study looking into social learning processes of postmigration parents who participated in a bottom‐up programme about raising teenagers in urban areas. Using an ethnographically inspired method combined with a preprogramme and postprogramme design, 115 Moroccan‐Dutch mothers and fathers from 15 programme groups participated. Results show that the programme provided a social learning space in which parents used themselves as resources to learn collectively about parenting. Moreover, parents consciously engaged in learning interactions across learning spaces stretched into their social networks. These analyses showed how parents' development of “learning citizenship” (Wenger, 2009 ) provides us with insight in collective learning dimensions present in a bottom‐up parenting programme, which is often not included in evaluation studies. Implications for practitioners as facilitators of parents' collective learning are presented.     

Conditional and marginal estimates in case-control family data – extensions and sensitivity analyses

This work considers two specific estimation techniques for the family-specific proportional hazards model and for the population-averaged proportional hazards model. So far, these two estimation procedures were presented and studied under the gamma frailty distribution mainly because of its simple interpretation and mathematical tractability. Modifications of both procedures for other frailty distributions, such as the inverse Gaussian, positive stable and a specific case of discrete distribution, are presented. By extensive simulations, it is shown that under the family-specific proportional hazards model, the gamma frailty model appears to be robust to frailty distribution mis-specification in both bias and efficiency loss in the marginal parameters. The population-averaged proportional hazards model, is found to be robust under the gamma frailty model mis-specification only under moderate or weak dependency within cluster members.     

论我国社会教育中的儿童参与权法律保障

在对儿童开展社会教育时，确保儿童的参与是极为重要的，但现实中儿童的参与严重不足，亟需法律保障。现行相关法律虽对于社会教育中的儿童参与权保障已经作了规定，但是这些规定存在诸多不足，难以有效保障社会教育中的儿童参与权，与《儿童权利公约》的要求不相适应。因此，我们应该尽快更新社会教育中的儿童参与权法律保障的理念，完善相关法律，促进相关法律的系统化，强化相关法律规范的可操作性，特别是要加强社会教育中的农村儿童参与权法律保障。     

When work keeps us apart: a thematic analysis of the experience of business travellers

Whilst business travel is deemed important for organisational success and economic outcomes, little is known about the actual process of business travelling from the perspective of individuals who undertake such travel on a regular basis. Thus the current qualitative study examined how business travellers (three women and eight men) attempt to find a balance between work and family, by focusing on how time together and time apart are experienced. The results can be interpreted and framed within work/family border theory in that business travellers' borders are less defined and less permeable, thus requiring them to border-cross more frequently. This necessitates a process of negotiation with key border-keepers (their spouse/partner). Business travellers also undertake compensatory behaviours to make up their time away from family. In order to find a work/family balance, they go through a process of adapting, negotiating and tailoring their lives around their work commitments to alleviate work–life conflict.     

北朝《李骞墓志》考释

李骞是北朝赵郡李氏代表人物之一。近年来《李骞墓志》的发现,为研究其生平以及赵郡李氏的有关问题提供了新史料。结合墓志和相关史料可知,李骞原名希义,字景让,后改名骞,再改字希义;李骞家族原来聚居平棘,后来迁居柏仁;李骞庶长兄长钧未被记入《李骞墓志》,李骞长女宝信当为高延宗妃;李骞生于北魏宣武帝永平元年(公元508年),卒于东魏孝静帝武定七年(公元549年),曾在北魏和东魏担任多种官职;《李骞墓志》出土于河北省赞皇县。     

Long-term care in Spain: Difficulties in professionalizing services

The aim of this article is to analyze the difficulties in professionalizing the long-term care system in Spain. Since 2006, the new Spanish law has recognized care as a subjective right, and regulations are being designed to create a framework for its professionalization. Nowadays, family remains the most important group of providers who care for their elders, and women remain the main informal caregivers. Why do families resist using public long-term care services and professional carers included in the new law? The hypothesis highlights sociocultural factors as an obstacle to professionalization of long-term care services in addition to political and economic factors. The results show qualitative data about expectations, preferences, and discourses that women caregivers have in relation to their responsibility. The empirical material includes 25 interviews with different profiles of caregivers and six focus groups with family caregivers. The article suggests that the Spanish ideal of care is a problem for the professionalization of services because the family remains as the main provider of care—without specific skills, knowledge, and abilities.     

LAS for Mej，Pappa——瑞典的家庭读写项目简介与启示

近年来，亲子阅读正逐渐成为国际早期阅读的重要趋势，父亲参与早期教育的重要性也日益受到关注。 LAS for Mej，Pappa(爸爸，请读给我听)，是瑞典应对家庭中父亲读写能力的读写项目，致力于读写能力的发展成为关乎每个人的事情。通过为父亲提供图书资料以及进行阅读技能的指导，使参与的父亲及其孩子的读写能力都获得了发展。通过对该方案产生的背景、内容以及实施效果的介绍，笔者提出了对于我国家庭读写教育的启示。