Albinism,spiritual and cultural practices,and implications for health,healthcare, and human rights: a scoping review

Persons with albinism – a disability found worldwide – are particularly at risk for human rights violations in Africa. The purpose of this scoping review was to establish the current state of knowledge on albinism, spiritual and cultural practices, and implications for health and health services. Electronic searches of nine databases were conducted. After screening, 40 articles were reviewed. Four themes emerged: health implications of albinism; health-related cultural and spiritual meanings attached to albinism; health-related experiences of persons with albinism; and human rights and albinism. The findings reveal that African ontologies, including witchcraft beliefs and practices, are implicated by their construction of the person with albinism as an ontologically different entity, although few studies explicated this relationship. How broader social structures influence persons with albinism disproportionately, resulting in health and social inequities, is another under-researched area. This scoping review lays the groundwork for intersectoral, interdisciplinary research.     

Developing an Index of Deprivation Which Integrates Objective and Subjective Dimensions: Extending the Work of Townsend,Mack and Lansley,and Halleröd

This article presents a new approach to index development, extending the methods used by Townsend, Mack and Lansley and Halleröd to measure deprivation in the developed world. The index combines three ‘objective’ dimensions of deprivation (i.e. monetary, consumption and work-related), and weighs them according to subjective perceptions regarding which items are more critical to deprivation. A particular application of factor analysis to determining deprivation measures and their corresponding weights leads to a more sophisticated and theoretically robust index than those used previously. The index draws on data from interviews with both partners of 17 households randomly sampled from a Turkish squatter settlement. The article contends that the methodological and substantive advantages of this approach are relevant to both developing and developed contexts.     

Trapped in small business? An investigation of three generations of migrants from Turkey to Western Europe

This article examines the self-employment behaviour of three generations of migrants from Turkey living in Europe to understand its implications for their economic adaptation into the receiving societies. It specifically investigates the likely generational differences in their propensity to engage in small businesses and the extent to which they are transmitted across generations. The research is based on the 2000 Families Survey, which draws parallel samples of migrant and non-migrant families from their origins in Turkey and traces them across Turkey and Europe over multiple generations. The data are drawn from a subset of personal interviews with 1743 economically active settlers nested within 836 families. The results challenge the assimilation theory but lend support to the disadvantage thesis by demonstrating that the younger generations, including the better educated, are significantly engaged in small, low-status businesses of their parents regardless of their language proficiency, citizenship status and country of residence.